We started national and international Nystagmus Awareness Day, also known as Wobbly Wednesday, back in 2013. But every Wednesday is awareness day on our Facebook page. This means you can talk about any aspect of nystagmus you choose and ask any questions you like. This is your forum to talk about everything to do with … Continue reading Every Wednesday is Nystagmus Awareness Day on Facebook
The Nystagmus Network is delighted to post some exciting news. In 2018 we are declaring 20 June the new permanent date for Nystagmus Awareness Day. Since 2013, we have celebrated Wobbly Wednesday in November, but in 2018 it will be in the summer and 18 to 24 June will be a Wobbly Week. In future … Continue reading Nystagmus Awareness Day 2018
We call our charity the Nystagmus Network, because it’s very important to us to help people affected by nystagmus to get together for mutual support. There is no better feeling than meeting someone else who has nystagmus themselves or has a child with nystagmus. To help members of the nystagmus community get together, this year … Continue reading It’s Tuesday – that’s Nystagmus Networking day on Facebook!
Every Monday over on our Facebook page we focus on a particular nystagmus-related topic to get the week started with a great conversation. Topics we have covered so far have included null point surgery, driving and nystagmus, talking to you child about nystagmus and whether or not to have cataracts removed when you have nystagmus. Anyone … Continue reading Monday Focus on Facebook
Chairman of the Nystagmus Network, Richard Wilson, formally received his OBE from Her Majesty The Queen at Windsor Castle on Friday. During his brief private conversation with Her Majesty, Richard made sure to mention nystagmus and the work of the Nystagmus Network. Congratulations, Richard!
In 2018 we’re looking for people who want to do something amazing. We’ve got lots of opportunities lined up and we’re ready to give you masses of support to follow your dream. So whether it’s a mountain trek to Kilimanjaro you fancy, a London to Paris bike ride or something a bit nearer to home, … Continue reading Could you do something extraordinary for nystagmus?
Parents often wonder when is the right time to talk to their children about nystagmus and what words to use. Our free to download booklet “Wobbly Eyes” can help. Covering things like going to school, out and about and making friends, the booklet uses child friendly language to help prepare a child for life with … Continue reading Explaining nystagmus to a child
Anyone needing information or support from the Nystagmus Network can now speak to someone on the phone throughout normal office hours. From Monday to Friday, Sue will answer the phone whenever she is available. If she happens to be away from her desk, or in the evenings and at weekends, you can leave a message. … Continue reading Nystagmus Network launches new information and support line
Julian Jackson lost his sight in 2010 as the result of an inherited retinal condition. Since then he has become a visual impairment champion. He has worked with a leading eye research organisation and, through his own social enterprise, VisionBridge, campaigned to bring sight loss and the need for more research to public awareness. His … Continue reading The Nystagmus Network supports Julian’s Big Blind Walk
Research participation opportunity If you use audio description services to watch TV, you could help Victoria, from the University of Seville, with her survey of VI friendly TV. Please read on … My name is Victoria García-Prieto and I work at the University of Seville (Spain). I am currently conducting research on accessible television for … Continue reading Do you use audio description to watch TV?