More rejections than Harry Potter?


  A report by John Sanders who, at different times, has been a Nystagmus Network trustee, as well as an employee and continues to be a member of the charity. The other day I went to a talk entitled “My wobbles through the world of nystagmus” by Southampton based ophthalmologist, Helena Lee. This was part … Continue reading More rejections than Harry Potter?

Thank you to Mike and Studley Wood GC


Nystagmus Network trustee and golfing enthusiast, Peter Greenwood, traveled to Studley Wood Golf Club in Oxfordshire earlier this week to receive, on behalf of the charity, a cheque for £4,300. The money had been raised during the year at various events by club members, their friends and families after club captain for the year, Mike … Continue reading Thank you to Mike and Studley Wood GC

Nystagmus Network/Fight for Sight joint grant – open for applications


The Fight for Sight / Nystagmus Network Small Grant Award Fight for Sight’s funds are allocated to research teams attached to UK academic or medical institutions. The research may be undertaken in the UK or overseas. We offer a range of funding opportunities. Find out about them, and how to make an application, below. Applications … Continue reading Nystagmus Network/Fight for Sight joint grant – open for applications

The Outspan Rebels VI ski team


Jamie and Josh Fuller are well known in the nystagmus community as the father and son team who delivered an inspirational presentation at Open Day last September. Jamie organised the Nystagmus Network’s first ever ski experience last year and this year they have promised us not one but two ski camps. The Outspan Rebels VI … Continue reading The Outspan Rebels VI ski team

Sue will be at ANUK conference


Nystagmus Network’s Executive Information and Development Manager, Sue, will be speaking at the Aniridia UK London meeting on Saturday, 14 April. ANUK warmly invite everyone affected by aniridia to join them for the day. There will be lots of opportunity to meet and share experiences with other people who have aniridia. There will also be … Continue reading Sue will be at ANUK conference

Meet Sue at VIEW


This Thursday, Sue from Nystagmus Network, will be attending the annual VIEW conference for teachers and specialists in educating visually impaired children and young people. The event takes place over two days in Birmingham. Delegates will find Sue in the exhibition area, eager to demonstrate the support and information the Nystagmus Network has to offer … Continue reading Meet Sue at VIEW

Sue attends Partially Sighted Society Conference 2018


Last Friday Sue attended the PSS very first Sight Loss conference in Doncaster on behalf of the Nystagmus Network. The day was attended by around 100 people with visual impairment, their family members and friends, carers and health professionals. It was an opportunity to hear from senior medical and research specialists as well as listen … Continue reading Sue attends Partially Sighted Society Conference 2018