Day: 1 June 2018

How amazing is Ben?

Here’s an amazing story from a very proud mum.

When my second son, Ben was born, from about 3 months we noticed there was something wrong with his eye movements. After nearly a year of waiting, research and MRI scans he was diagnosed with Congenital Nystagmus.
We weren’t sure how this would affect him and it has all been a guessing game.
Ben’s just had a great year at nursery and we’re getting ready for him to start P1 in September. He has developed great and hasn’t let it stop him.
Such a positive, caring boy who’s had so many hospital and doctor appointments, any other child wouldn’t stick it.

How amazing is Freya?

I was born with nystagmus and always struggled at school both in the classroom and in PE. All throughout my education it’s been a continuous trip to the printer to enlarge text books and print outs. Things didn’t really change at college. I was told I had dyslexia which could be linked to the nystagmus, because of the way my brain is seeing the words. I was offered support sessions to look at alternative methods of learning. I then went on to university and this year I am graduating! I have studied law for the past three years and in September will be going on to train as a barrister. I anticipate many challenges due to nystagmus such as mock court situations. Reading facial expressions and looking at evidence may be challenging, but nystagmus won’t stop me.