How amazing is Matt?

Matt has nystagmus, but, as his Mum tells us, he is on the road to a stellar career.

Matt is currently the director / choreographer for a production of Joseph in our local area later this year. There are 50 young people in the show and he works tirelessly for the group. He has been part of the production team and chairman of the group since it started 3 years ago. He gives his time totally voluntarily. He has also gained grade 8 in Speech and Drama, Musical Theatre, Classical Singing and tap dancing. He also performs with our local amateur musical theatre group.

Open Day tickets for members – available soon

Tickets to the biggest UK nystagmus event of the year will soon be available to book. Subscribed members of the charity will be able to book their priority free tickets to our annual Open Day from 12.00 midday on Thursday 26 June. Members will be notified with details of how to book their places by email or post.

Any remaining tickets will go on sale on a first come, first served basis to non-members from Thursday 26 July at £27 per adult, £10 per child.

How amazing is Katrina?

Katrina thinks she’s just a regular student who happens to have nystagmus – we think she’s an amazing nystagmus ambassador!

Here’s Katrina’s nystagmus story …

I am 19 years old. I attended a mainstream school and was treated like everyone else. I felt no different. In my exams I had A3 papers and extra time, which helped a lot. I came out of school with 9 GCSEs. My career goal is to gain an apprenticeship doing Business Administration or Digital Marketing. The person who inspired me was my Grandad. I always looked up to him. Now I’m at college and I also volunteer with Youth Zone and Shopmobility doing administration work, which I thoroughly enjoy. 

What Katrina didn’t tell you is …

In May 2018 Katrina joined the Big Blind Walk!

Katrina spent some time walking with Julian Jackson as his Big Blind Walk took him through Carlisle and on to Scotland. She told Julian all about nystagmus and how it affects her.

Katrina says:
“It was an absolute pleasure to meet Julian and to walk with him.”

Julian messaged us to say:
“I was delighted to have Katrina walk alongside me for a distance out of Carlisle early this morning. We discussed her Nystagmus and I am so grateful for the support she has given the Big Blind Walk.”

We say:
“Well done, Katrina. Fabulous nystagmus ambassador!”