Could you do something extraordinary for nystagmus?


In 2018 we’re looking for people who want to do something amazing. We’ve got lots of opportunities lined up and we’re ready to give you masses of support to follow your dream. So whether it’s a mountain trek to Kilimanjaro you fancy, a London to Paris bike ride or something a bit nearer to home, … Continue reading Could you do something extraordinary for nystagmus?

Nystagmus Network launches new information and support line


Anyone needing information or support from the Nystagmus Network can now speak to someone on the phone throughout normal office hours. From Monday to Friday, Sue will answer the phone whenever she is available. If she happens to be away from her desk, or in the evenings and at weekends, you can leave a message. … Continue reading Nystagmus Network launches new information and support line

The Nystagmus Network supports Julian’s Big Blind Walk


Julian Jackson lost his sight in 2010 as the result of an inherited retinal condition. Since then he has become a visual impairment champion. He has worked with a leading eye research organisation and, through his own social enterprise, VisionBridge, campaigned to bring sight loss and the need for more research to public awareness. His … Continue reading The Nystagmus Network supports Julian’s Big Blind Walk

Do you use audio description to watch TV?


Research participation opportunity If you use audio description services to watch TV, you could help Victoria, from the University of Seville, with her survey of VI friendly TV. Please read on … My name is Victoria García-Prieto and I work at the University of Seville (Spain). I am currently conducting research on accessible television for … Continue reading Do you use audio description to watch TV?

Magnets and nystagmus – research news update


Researchers at University College London, Moorfields Eye Hospital, and the University of Oxford are developing magnetic implants to treat nystagmus. Last year, Nystagmus Network assisted Dr Parashkev Nachev, from University College London, in recruiting suitable candidates with the acquired from of nystagmus to take part in the next stage trial, following initial success with a single subject. … Continue reading Magnets and nystagmus – research news update

Nystagmus research news update from Dr Helen Griffiths at Sheffield University


Helen and her team are working on a virtual reality solution for the problematic sympton of oscillopsia in Acquired Nystagmus. Helen writes: “Many thanks to you all at Nystagmus Network and to your partners Fight for Sight for your support, allowing us to continue the VR project work. We have started and have been able … Continue reading Nystagmus research news update from Dr Helen Griffiths at Sheffield University

Mousetrap VI Theatre Trip


If you would like to take part in a family event especially for children and young people who have a visual impairment, Nystagmus Network is offering you the opportunity to join a special London theatre experience for families. The Little Match Girl and other happier tales For adults and brave children alike, expect music, puppetry, … Continue reading Mousetrap VI Theatre Trip

Fancy doing a sky dive for Nystagmus Network?


Last year the charity held its first ever fundraising skydive. Luke Sargent jumped out of a plane while his young son watched proudly. Imagine that! Now we’ve signed up with UK Skydiving Adventures so anyone can have a go. Simply follow the link to the website and get yourself signed up. It’s just one brave … Continue reading Fancy doing a sky dive for Nystagmus Network?