Broadway swimming club joins #nystagmusbigswim


We’re celebrating today the huge achievements of Lucie Wood and her family in support of Wobbly Wednesday 2017 (national and international Nystagmus Awareness Day) and the #nystagmusbigswim. Lucie’s daughter has nystagmus. She, her sister and their 2 cousins decided to take part in the #nystagmusbigswim. When they asked their swimming club, Broadway ASC in Oldham, if … Continue reading Broadway swimming club joins #nystagmusbigswim

Want to run the London Vitality 10k for the Nystagmus Network?


If you’re looking for a challenge and would like to help this charity raise funds, why not sign up for one of our free places in the London Vitality 10k on 28 May? All we ask is that you set up a Justgiving page for your sponsors, agree to raise at least £100 for the … Continue reading Want to run the London Vitality 10k for the Nystagmus Network?

Soft contact lenses may improve vision in adults with CIN


A pilot randomised study, led by Maria Theodorou FRCOphth, PhD at Moorfields Eye Hospital, London, funded by the Nystagmus Network/Fight for Sight, Moorfields Eye Hospital Special Trustees and the National Institute for Health Research (NIHR), has shown that wearing soft contact lenses may help people with CIN see a little better. The purpose of the study … Continue reading Soft contact lenses may improve vision in adults with CIN

New research project on visual crowding in CIN


A new research project is being undertaken at Moorfields Eye Hospital and University College London. The aim of the study is to understand better the visual abilities of people with congenital nystagmus, with a particular focus on visual crowding, a phenomenon which occurs when an object that is visible in isolation becomes impossible to recognise … Continue reading New research project on visual crowding in CIN

Nystagmus Network launches new publication on nystagmus and driving


Whether or not people with nystagmus can drive is probably the most frequently asked question the charity receives. Because nystagmus is such a complex condition and affects everyone differently, there is no definitive answer. In our new publication, Nystagmus and Driving, we address all the issues, answer your questions and signpost to free and concessionary … Continue reading Nystagmus Network launches new publication on nystagmus and driving

Nystagmus Network and Fight for Sight fund two new nystagmus research projects


Nystagmus Network and Fight for Sight have partnered to fund research aimed at the early detection of nystagmus and improve the quality of life of those with nystagmus Fight for Sight, the UK’s leading eye research charity, and Nystagmus Network, the foremost charity in the UK providing support and information about nystagmus, are working in partnership to fund … Continue reading Nystagmus Network and Fight for Sight fund two new nystagmus research projects

Richard receives New Year’s honour


The Nystagmus Network is delighted and proud to announce that our charity Chairman, Richard Wilson, has received an OBE in Her Majesty the Queen’s New Year’s Honours list today. Richard says: “This award is primarily for my work as a Civil Servant for the past 36 years, but undoubtedly it also reflects my time as … Continue reading Richard receives New Year’s honour

Research investment by the Nystagmus Network


Thanks to generous donations and income from membership subscriptions, trustees of the Nystagmus Network were able to allocate their full research budget to new and continuing nystagmus studies in 2017. Towards the end of the year an opportunity arose to fund an additional research project, likely to have a huge impact on the quality of … Continue reading Research investment by the Nystagmus Network

Mousetrap Theatre Experience, London


The Nystagmus Network is considering organising a theatre experience for children and young people with nystagmus and their families, in partnership with Mousetrap Theatre Projects. The day would include a drama workshop, touch tour of the theatre (where children get to see costumes and props up close) and tickets for a London show. It would … Continue reading Mousetrap Theatre Experience, London

Nystagmus and disability sports classification


  The Nystagmus Network often hears of people struggling with the current classifications for vision impairment in sports. Since many people with nystagmus probably don’t classify with the current test we would like to invite members of the nystagmus community to take part in new research which may bring us all one step closer to … Continue reading Nystagmus and disability sports classification