Julian Jackson lost his sight in 2010 as the result of an inherited retinal condition. Since then he has become a visual impairment champion. He has worked with a leading eye research organisation and, through his own social enterprise, VisionBridge, campaigned to bring sight loss and the need for more research to public awareness. His … Continue reading The Nystagmus Network supports Julian’s Big Blind Walk
Research participation opportunity If you use audio description services to watch TV, you could help Victoria, from the University of Seville, with her survey of VI friendly TV. Please read on … My name is Victoria García-Prieto and I work at the University of Seville (Spain). I am currently conducting research on accessible television for … Continue reading Do you use audio description to watch TV?
Researchers at University College London, Moorfields Eye Hospital, and the University of Oxford are developing magnetic implants to treat nystagmus. Last year, Nystagmus Network assisted Dr Parashkev Nachev, from University College London, in recruiting suitable candidates with the acquired from of nystagmus to take part in the next stage trial, following initial success with a single subject. … Continue reading Magnets and nystagmus – research news update
Helen and her team are working on a virtual reality solution for the problematic sympton of oscillopsia in Acquired Nystagmus. Helen writes: “Many thanks to you all at Nystagmus Network and to your partners Fight for Sight for your support, allowing us to continue the VR project work. We have started and have been able … Continue reading Nystagmus research news update from Dr Helen Griffiths at Sheffield University
If you would like to take part in a family event especially for children and young people who have a visual impairment, Nystagmus Network is offering you the opportunity to join a special London theatre experience for families. The Little Match Girl and other happier tales For adults and brave children alike, expect music, puppetry, … Continue reading Mousetrap VI Theatre Trip
Last year the charity held its first ever fundraising skydive. Luke Sargent jumped out of a plane while his young son watched proudly. Imagine that! Now we’ve signed up with UK Skydiving Adventures so anyone can have a go. Simply follow the link to the website and get yourself signed up. It’s just one brave … Continue reading Fancy doing a sky dive for Nystagmus Network?
Thanks to John Gray and his Dorset golf club for their generosity, the Nystagmus Network will be able to continue to invest in research. John had no hesitation in nominating the Nystagmus Network as his captain’s charity of the year when he took up the reins as captain of Crane Valley Golf Club in 2017. … Continue reading Thank you John and Crane Valley GC
We’re celebrating today the huge achievements of Lucie Wood and her family in support of Wobbly Wednesday 2017 (national and international Nystagmus Awareness Day) and the #nystagmusbigswim. Lucie’s daughter has nystagmus. She, her sister and their 2 cousins decided to take part in the #nystagmusbigswim. When they asked their swimming club, Broadway ASC in Oldham, if … Continue reading Broadway swimming club joins #nystagmusbigswim
If you’re looking for a challenge and would like to help this charity raise funds, why not sign up for one of our free places in the London Vitality 10k on 28 May? All we ask is that you set up a Justgiving page for your sponsors, agree to raise at least £100 for the … Continue reading Want to run the London Vitality 10k for the Nystagmus Network?
A pilot randomised study, led by Maria Theodorou FRCOphth, PhD at Moorfields Eye Hospital, London, funded by the Nystagmus Network/Fight for Sight, Moorfields Eye Hospital Special Trustees and the National Institute for Health Research (NIHR), has shown that wearing soft contact lenses may help people with CIN see a little better. The purpose of the study … Continue reading Soft contact lenses may improve vision in adults with CIN