World Film Première – Through my Lenses


The Nystagmus Network was proud to be granted permission to hold the first public screening anywhere in the world of a brand new short film about nystagmus at our 2017 Open Day in Birmingham on 30 September. Almost 200 members of the nystagmus community were present to watch the film. The film’s creator is a … Continue reading World Film Première – Through my Lenses

Would you like to work for the Nystagmus Network?


The charity is currently recruiting to a new temporary part time or full time post of Information Support Officer. This opportunity is offered initially to 30 April 2018 pending a review of the Charity’s staffing needs. Full time hours are 35 per week at an annual salary of £18,000, with 20 days annual leave entitlement. … Continue reading Would you like to work for the Nystagmus Network?

Moorfield’s latest nystagmus research in children


A research team at Moorfield’s Eye Hospital in London, headed by Maria Theodourou, is conducting an investigation into how the vision and nystagmus develop in young children. Until the end of 2017 they are looking to recruit infants and young children (up to 3 years of age) with idiopathic nystagmus to take part. So, provided your … Continue reading Moorfield’s latest nystagmus research in children

The effect of attachment style on quality of life in visually impaired individuals


City University would like to invite you to take part in a research study. Before you decide whether you would like to take part it is important that you understand why the research  is being done and what it would involve for you. Please take time to read the following information carefully and discuss it … Continue reading The effect of attachment style on quality of life in visually impaired individuals

Characteristics and Impact of Nystagmus in Children With and Without Down’s Syndrome Research Study


A study by the Down’s Syndrome Vision Research Unit and Research Unit for Nystagmus (RUN), School of Optometry and Vision Sciences are looking to recruit children to take part in a research study. What is involved? Your child’s vision will be tested by a qualified optometrist in the Special Assessment clinic. This will take approximately 30 … Continue reading Characteristics and Impact of Nystagmus in Children With and Without Down’s Syndrome Research Study

My bouncing eyes baby!


Hello, my name is Charlotte and I am mother to a ridiculously delicious six year old girl named Scarlett. In every way Scarlett is a picture of happiness and joy. She needs very little to keep that big smile spread firmly across her angelic face, literally affection and biscuits will do the trick! I am … Continue reading My bouncing eyes baby!

Nystagmus Network Research Strategy 2017-19


One of the main goals at the Nystagmus Network is to encourage research with a view to finding treatments, a cure and to improve the everyday lives of those with nystagmus. In order to meet this goal, the charity has created a Research Strategy which will enable the Nystagmus Network to plan its involvement with the … Continue reading Nystagmus Network Research Strategy 2017-19

Become a member of the Nystagmus Network


As a small charity, the Nystagmus Network relies heavily on regular income from membership subscriptions. Over the years our membership has steadily grown and at the same time the cost of subscriptions has remained fairly static. This means that we are supporting an ever growing nystagmus community on a fairly modest income. To find out … Continue reading Become a member of the Nystagmus Network