Making the most of education – Rory Cobb


The Nystagmus Network was delighted to have Rory Cobb with us at Open Day 2017 to lead off the parents’ conference with an informative and inspiring presentation. Rory has a life time’s experience of working in the field of education and supporting children with low vision. Rory was ably assisted by his RNIB colleague, Sue … Continue reading Making the most of education – Rory Cobb

Nystagmus research update from Southampton


The Nystagmus Network was privileged and proud to be joined at Open Day 2017 on 30 September by representatives from the 6 UK centres of excellence in nystagmus research. Each team presented news of the latest developments over the past year and highlighted work in progress for the future. Mr Jay Self BM, FRCOphth, PhD, Associate Professor at Southampton … Continue reading Nystagmus research update from Southampton

Nystagmus research update from Sheffield


The Nystagmus Network was privileged and proud to be joined at Open Day 2017 on 30 September by representatives from the 6 UK centres of excellence in nystagmus research. Each team presented news of the latest developments over the past year and highlighted work in progress for the future. Dr Helen Griffiths, Senior Lecturer in Orthoptics … Continue reading Nystagmus research update from Sheffield

Nystagmus research update from Plymouth


The Nystagmus Network was privileged and proud to be joined at Open Day 2017 on 30 September by representatives from the 6 UK centres of excellence in nystagmus research. Each team presented news of the latest developments over the past year and highlighted work in progress for the future. We were delighted to have John … Continue reading Nystagmus research update from Plymouth

Nystagmus research update from London


The Nystagmus Network was privileged and proud to be joined at Open Day 2017 on 30 September by representatives from the 6 UK centres of excellence in nystagmus research. Each team presented news of the latest developments over the past year and highlighted work in progress for the future. Maria Theodorou, Consultant Ophthalmologist at Moorfield’s … Continue reading Nystagmus research update from London

Nystagmus research update from Leicester


The Nystagmus Network was privileged and proud to be joined at Open Day 2017 on 30 September by representatives from the 6 UK centres of excellence in nystagmus research. Each team presented news of the latest developments over the past year and highlighted work in progress for the future. Dr Rebecca McLean (PhD), Research Associate, Department … Continue reading Nystagmus research update from Leicester

Nystagmus research update from Cardiff


The Nystagmus Network was privileged and proud to be joined at Open Day 2017 on 30 September by representatives from the 6 UK centres of excellence in nystagmus research. Each team presented news of the latest developments over the past year and highlighted work in progress for the future. Professor Jonathan T. Erichsen, DPhil, Professor of … Continue reading Nystagmus research update from Cardiff

World Film Première – Through my Lenses


The Nystagmus Network was proud to be granted permission to hold the first public screening anywhere in the world of a brand new short film about nystagmus at our 2017 Open Day in Birmingham on 30 September. Almost 200 members of the nystagmus community were present to watch the film. The film’s creator is a … Continue reading World Film Première – Through my Lenses

Nystagmus Network Research Strategy 2017-19


One of the main goals at the Nystagmus Network is to encourage research with a view to finding treatments, a cure and to improve the everyday lives of those with nystagmus. In order to meet this goal, the charity has created a Research Strategy which will enable the Nystagmus Network to plan its involvement with the … Continue reading Nystagmus Network Research Strategy 2017-19

Merry Christmas everyone!


Merry Christmas everyone! It’s been a very busy year at the Nystagmus Network with lots taking place! Our Chairman Richard has a short Christmas message he would like to share with you all – please click on the image below or the link here to watch it. Thank you for our support in 2016! Finally, … Continue reading Merry Christmas everyone!