One of the main goals at the Nystagmus Network is to encourage research with a view to finding treatments, a cure and to improve the everyday lives of those with nystagmus. In order to meet this goal, the charity has created a Research Strategy which will enable the Nystagmus Network to plan its involvement with the … Continue reading Nystagmus Network Research Strategy 2017-19
Merry Christmas everyone! It’s been a very busy year at the Nystagmus Network with lots taking place! Our Chairman Richard has a short Christmas message he would like to share with you all – please click on the image below or the link here to watch it. Thank you for our support in 2016! Finally, … Continue reading Merry Christmas everyone!
It is with great sadness that we announce the sudden and unexpected death of Trustee Steve McKay from Newton Abbot in Devon. Steve suffered a tragic road accident on Thursday 1 December which rendered him unconscious and he never recovered, passing away on Sunday 4 December. Steve has been a highly-valued Trustee with the Nystagmus … Continue reading Steve McKay announcement
This weeks video blog features Dan giving an overview of the recent UK Eye Genetics Group Conference which was held on the 25th November. The Nystagmus Network was a sponsor of the event!
This week the video blog at the Nystagmus Network features our very own Sue! The video is her interview with Peterborough Community Radio which is hosted by one of our very loyal and long standing supporters Tim Heywood. Sue and Tim discuss the Nystagmus Network, nystagmus and Wobbly Wednesday.
Our video this week focuses on Wobbly Wednesday and why your support is so important! It helps us raise awareness of nystagmus and make it the topic of discussion for the day.
Today we are excited to officially announce our new volunteers at the Nystagmus Network! Earlier this year we started a recruitment drive to find people who were passionate and committed to supporting the nystagmus community as part of our peer-to-peer support model. The charity was inundated with applications, ranging from adults with nystagmus to healthcare … Continue reading Meet our new Nystagmus Network volunteers!
Our latest video blog features an interview by our very own Sue with two of the charity’s fundraisers! Gavin and Paula Birch recently held a fun day and football match for the Nystagmus Network where they were able to raise funds and awareness of the condition. Their daughter Freya was diagnosed with nystagmus when she … Continue reading Fundraising for the Nystagmus Network
One of our main objectives at the Nystagmus Network is to provide information and support to the nystagmus community. To achieve this we have been working hard reviewing all of our documents to make sure they are up to date, readily available and appeal to a wide audience. Not only have we have produced brand … Continue reading Check out our new nystagmus booklets!
Our second video blog has been recorded by Sue Ricketts. Sue has been involved with the Nystagmus Network for many years and joined the charity as the Communication and Development Manager in 2015. In the vide Sue talks about her involvement with the charity and how she has seen it grow in strength over the … Continue reading Sue’s journey at the Nystagmus Network