Nystagmus in the open and the Big Blind Walk


On national and international Nystagmus Awareness Day, Wednesday 20 June, why not help us really get ‘nystagmus in the open‘ by joining Julian Jackson on one of the final legs of his 1,000 mile Big Blind Walk? On that day Julian will be walking from Helmsdale to Dunbeath in the Scottish Highlands along the A9 … Continue reading Nystagmus in the open and the Big Blind Walk

Nystagmus Awareness Day – for clinics


Please help us to promote national and international Nystagmus Awareness Day, on Wednesday 20 June, in clinics and hospitals all over the UK and the world. We have free to download PowerPoint presentations which can be displayed on a screen in reception. We also have a free bunting template. For those organising a fundraising event, … Continue reading Nystagmus Awareness Day – for clinics

Nystagmus Awareness Day – for sports clubs


Calling all sports and athletics clubs – we want you to join us for ‘nystagmus in the open‘ on national and international Nystagmus Awareness Day on Wednesday 20 June. We need you to help us prove that children and adults with nystagmus can take part in sport and fitness, despite their visual impairment. So please … Continue reading Nystagmus Awareness Day – for sports clubs

Nystagmus in the garden


To mark the end of Wobbly Week 2018, Sue will be opening her tiny courtyard garden in Lincolnshire to the public for ‘nystagmus in the open‘. There will be tea and cakes, a book stall, craft table, bric-a-brac and plants for sale – and lots of Nystagmus Network bunting! Sue and her husband have been members … Continue reading Nystagmus in the garden

Join Easyfundraising.com and raise donations for the Nystagmus Network every time you shop online


We all shop online, but did you know that, by signing up with Easyfundraising.com you could be raising money for the Nystagmus Network – and it doesn’t cost you a penny. You could also take advantage of some great deals. We already have a growing group of shoppers collecting a few pence, or even a … Continue reading Join Easyfundraising.com and raise donations for the Nystagmus Network every time you shop online

Thank you to Mike and Studley Wood GC


Nystagmus Network trustee and golfing enthusiast, Peter Greenwood, traveled to Studley Wood Golf Club in Oxfordshire earlier this week to receive, on behalf of the charity, a cheque for £4,300. The money had been raised during the year at various events by club members, their friends and families after club captain for the year, Mike … Continue reading Thank you to Mike and Studley Wood GC

Friday Fundraisers on Facebook


Every Friday on our Facebook page we celebrate the achievements of the week’s top fundraiser, feature the story of one of our upcoming fundraisers or signpost you to fabulous and fun fundraising opportunities. So please join us every Friday on Facebook and help us say a huge thank you to all our wonderful fundraisers. Our … Continue reading Friday Fundraisers on Facebook

Could you do something extraordinary for nystagmus?


In 2018 we’re looking for people who want to do something amazing. We’ve got lots of opportunities lined up and we’re ready to give you masses of support to follow your dream. So whether it’s a mountain trek to Kilimanjaro you fancy, a London to Paris bike ride or something a bit nearer to home, … Continue reading Could you do something extraordinary for nystagmus?

The Nystagmus Network supports Julian’s Big Blind Walk


Julian Jackson lost his sight in 2010 as the result of an inherited retinal condition. Since then he has become a visual impairment champion. He has worked with a leading eye research organisation and, through his own social enterprise, VisionBridge, campaigned to bring sight loss and the need for more research to public awareness. His … Continue reading The Nystagmus Network supports Julian’s Big Blind Walk

Fancy doing a sky dive for Nystagmus Network?


Last year the charity held its first ever fundraising skydive. Luke Sargent jumped out of a plane while his young son watched proudly. Imagine that! Now we’ve signed up with UK Skydiving Adventures so anyone can have a go. Simply follow the link to the website and get yourself signed up. It’s just one brave … Continue reading Fancy doing a sky dive for Nystagmus Network?