Could you take the plunge and abseil down from the 262 feet high viewing platform at the ArcelorMittal Orbit at the Queen Elizabeth Olympic Park? It’s an exhilarating descent to the ground, with a breathtaking 20 mile vista across London, including iconic buildings such as the Gherkin, St Paul’s Cathedral, Canary Wharf and Wembley Stadium, … Continue reading Want to abseil at the Queen Elizabeth Olympic Park?
Every time you shop online you could be raising a donation for the Nystagmus Network, absolutely free. All you need to do is visit the Easy Fundraising website and click through to the retailer of your choice. All the major ones are listed – and so is the Nystagmus Network. It’s so simple – there’s … Continue reading Sign up to Easy Fundraising for free donations
Growing up with nystagmus and albinism, I hated school and social interaction. I was always self-conscious and easily embarrassed that my weak eyesight, poor balance and hypersensitivity to sunlight made me rubbish at activities like sports and hiking. I was, however, always good at academics and especially loved reading. In my early years at school, … Continue reading How amazing is Mehak?
Rylan’s Mum says: “My son Rylan was only diagnosed with nystagmus in Reception at school, although I had always noticed his eyes swinging from side to side. He is just turned six and is the first free reader in his class! We are so proud as we know scanning the words isn’t easy for him … Continue reading How amazing is Rylan?
I wanted to share my story to show people with nystagmus that it doesn’t have to stop you from fulfilling your dreams. I was born with nystagmus and my parents were told I would need lots of help and wouldn’t manage mainstream school. Well I did manage it, and also managed college, university, and thereafter … Continue reading How amazing is Suzanne?
My son Alfie who is almost 10 has never let anything stand in his way despite now being blind in one eye and having Nystagmus. Alfie persevered in learning how to ride his bike last year and got one for his 9th Birthday. He is going to be sitting the 11+ this September because he is determined … Continue reading How amazing is Alfie?
When I first started school I really struggled to read. It took me months and months to read the first Harry Potter book for myself in large print. I got lots of help at school, though, and especially at university. Now I’ve got a degree in philosophy.
I was born with nystagmus and always struggled at school both in the classroom and in PE. All throughout my education it’s been a continuous trip to the printer to enlarge text books and print outs. Things didn’t really change at college. I was told I had dyslexia which could be linked to the nystagmus, … Continue reading How amazing is Freya?
Throughout June we’ll be publishing all your amazing nystagmus stories right here on our blog and also on our Facebook page and asking people to donate just £5 to help the Nystagmus Network support more people with nystagmus to be amazing.
There are bound to be loads of bake sales for Nystagmus Awareness Day 2018 on 20 June, so we thought it would be a great idea to have some Nystagmus Network cake flags made, especially for you. Order your free cake flags today. But hurry, they’re going like …