Nystagmus and Quality of Life


A research paper is republished this month into the quality of life of people living with nystagmus. Professor Irene Gottlob and Dr Rebecca McLean from the University of Leicester shared their findings in the British Journal of Ophthalmology. Their report followed an extensive research study, funded jointly by the Nystagmus Network and Fight for Sight. … Continue reading Nystagmus and Quality of Life

More rejections than Harry Potter?


  A report by John Sanders who, at different times, has been a Nystagmus Network trustee, as well as an employee and continues to be a member of the charity. The other day I went to a talk entitled “My wobbles through the world of nystagmus” by Southampton based ophthalmologist, Helena Lee. This was part … Continue reading More rejections than Harry Potter?

Nystagmus Network/Fight for Sight joint grant – open for applications


The Fight for Sight / Nystagmus Network Small Grant Award Fight for Sight’s funds are allocated to research teams attached to UK academic or medical institutions. The research may be undertaken in the UK or overseas. We offer a range of funding opportunities. Find out about them, and how to make an application, below. Applications … Continue reading Nystagmus Network/Fight for Sight joint grant – open for applications

Sue visits Queen’s Medical Centre, Nottingham


Dr Kong Yien Chin, a clinical scientist working in the Evoked Potentials Clinic at Nottingham’s Queen’s Medical Centre, invited the Nystagmus Network’s Sue Ricketts to view the clinic, meet the team and discuss potential collaboration opportunities on nystagmus research projects. Sue was very impressed by what she saw. The last time she had stepped inside … Continue reading Sue visits Queen’s Medical Centre, Nottingham

Thursday is research news day on Facebook


Every Thursday on our Facebook page we publish the latest news on nystagmus research or publish details of new nystagmus trials that you can take part in. We are currently supporting these trials: The Southampton University Hospital team need to find people with albinism and nystagmus, aged over 60 so that Mr Jay Self and … Continue reading Thursday is research news day on Facebook

The Nystagmus Network supports Julian’s Big Blind Walk


Julian Jackson lost his sight in 2010 as the result of an inherited retinal condition. Since then he has become a visual impairment champion. He has worked with a leading eye research organisation and, through his own social enterprise, VisionBridge, campaigned to bring sight loss and the need for more research to public awareness. His … Continue reading The Nystagmus Network supports Julian’s Big Blind Walk

Do you use audio description to watch TV?


Research participation opportunity If you use audio description services to watch TV, you could help Victoria, from the University of Seville, with her survey of VI friendly TV. Please read on … My name is Victoria García-Prieto and I work at the University of Seville (Spain). I am currently conducting research on accessible television for … Continue reading Do you use audio description to watch TV?

Magnets and nystagmus – research news update


Researchers at University College London, Moorfields Eye Hospital, and the University of Oxford are developing magnetic implants to treat nystagmus. Last year, Nystagmus Network assisted Dr Parashkev Nachev, from University College London, in recruiting suitable candidates with the acquired from of nystagmus to take part in the next stage trial, following initial success with a single subject. … Continue reading Magnets and nystagmus – research news update

Nystagmus research news update from Dr Helen Griffiths at Sheffield University


Helen and her team are working on a virtual reality solution for the problematic sympton of oscillopsia in Acquired Nystagmus. Helen writes: “Many thanks to you all at Nystagmus Network and to your partners Fight for Sight for your support, allowing us to continue the VR project work. We have started and have been able … Continue reading Nystagmus research news update from Dr Helen Griffiths at Sheffield University

Soft contact lenses may improve vision in adults with CIN


A pilot randomised study, led by Maria Theodorou FRCOphth, PhD at Moorfields Eye Hospital, London, funded by the Nystagmus Network/Fight for Sight, Moorfields Eye Hospital Special Trustees and the National Institute for Health Research (NIHR), has shown that wearing soft contact lenses may help people with CIN see a little better. The purpose of the study … Continue reading Soft contact lenses may improve vision in adults with CIN