The Nystagmus Network supports Julian’s Big Blind Walk


Julian Jackson lost his sight in 2010 as the result of an inherited retinal condition. Since then he has become a visual impairment champion. He has worked with a leading eye research organisation and, through his own social enterprise, VisionBridge, campaigned to bring sight loss and the need for more research to public awareness. His … Continue reading The Nystagmus Network supports Julian’s Big Blind Walk

Do you use audio description to watch TV?


Research participation opportunity If you use audio description services to watch TV, you could help Victoria, from the University of Seville, with her survey of VI friendly TV. Please read on … My name is Victoria García-Prieto and I work at the University of Seville (Spain). I am currently conducting research on accessible television for … Continue reading Do you use audio description to watch TV?

Magnets and nystagmus – research news update


Researchers at University College London, Moorfields Eye Hospital, and the University of Oxford are developing magnetic implants to treat nystagmus. Last year, Nystagmus Network assisted Dr Parashkev Nachev, from University College London, in recruiting suitable candidates with the acquired from of nystagmus to take part in the next stage trial, following initial success with a single subject. … Continue reading Magnets and nystagmus – research news update

Nystagmus research news update from Dr Helen Griffiths at Sheffield University


Helen and her team are working on a virtual reality solution for the problematic sympton of oscillopsia in Acquired Nystagmus. Helen writes: “Many thanks to you all at Nystagmus Network and to your partners Fight for Sight for your support, allowing us to continue the VR project work. We have started and have been able … Continue reading Nystagmus research news update from Dr Helen Griffiths at Sheffield University

Soft contact lenses may improve vision in adults with CIN


A pilot randomised study, led by Maria Theodorou FRCOphth, PhD at Moorfields Eye Hospital, London, funded by the Nystagmus Network/Fight for Sight, Moorfields Eye Hospital Special Trustees and the National Institute for Health Research (NIHR), has shown that wearing soft contact lenses may help people with CIN see a little better. The purpose of the study … Continue reading Soft contact lenses may improve vision in adults with CIN

New research project on visual crowding in CIN


A new research project is being undertaken at Moorfields Eye Hospital and University College London. The aim of the study is to understand better the visual abilities of people with congenital nystagmus, with a particular focus on visual crowding, a phenomenon which occurs when an object that is visible in isolation becomes impossible to recognise … Continue reading New research project on visual crowding in CIN

Nystagmus Network and Fight for Sight fund two new nystagmus research projects


Nystagmus Network and Fight for Sight have partnered to fund research aimed at the early detection of nystagmus and improve the quality of life of those with nystagmus Fight for Sight, the UK’s leading eye research charity, and Nystagmus Network, the foremost charity in the UK providing support and information about nystagmus, are working in partnership to fund … Continue reading Nystagmus Network and Fight for Sight fund two new nystagmus research projects

Research investment by the Nystagmus Network


Thanks to generous donations and income from membership subscriptions, trustees of the Nystagmus Network were able to allocate their full research budget to new and continuing nystagmus studies in 2017. Towards the end of the year an opportunity arose to fund an additional research project, likely to have a huge impact on the quality of … Continue reading Research investment by the Nystagmus Network

Nystagmus and disability sports classification


  The Nystagmus Network often hears of people struggling with the current classifications for vision impairment in sports. Since many people with nystagmus probably don’t classify with the current test we would like to invite members of the nystagmus community to take part in new research which may bring us all one step closer to … Continue reading Nystagmus and disability sports classification

Research participation opportunity – albinism in the over 60s


Albinism researchers in Southampton (Jay Self and Helena Lee) would love to hear from anyone with any form of albinism who is over the age of 60. If you or anyone you know fits the bill, please read on …     Jay and Helena are seeking to understand two questions which have baffled researchers … Continue reading Research participation opportunity – albinism in the over 60s