If you or someone in your family has nystagmus, then make sure you meet your ECLO (Eye Clinic Liaison Officer). You can ask for them the next time you visit the clinic, or find their details on your local authority’s ‘local offer’ page, under visual impairment or sensory services. Alternatively you can search the RNIB’s Sightline Directory.
The role of the ECLO is to support anyone affected by visual impairment or sight loss, from the point of diagnosis onwards. They can offer you information and support and signpost you to organisations, like the Nystagmus Network, who can help you. They can also help you come to terms with your condition and make sure you have someone to talk to.
So if you’re a VIP (visually impaired person), your ECLO is also a VIP (very important person) to get to know.