Today we are excited to officially announce our new volunteers at the Nystagmus Network! Earlier this year we started a recruitment drive to find people who were passionate and committed to supporting the nystagmus community as part of our peer-to-peer support model.
The charity was inundated with applications, ranging from adults with nystagmus to healthcare professionals. Following a short review, we are delighted to announce that the following people will be joining the Nystagmus Network as volunteers:
- Rachel Thomas who is a parent to a child with nystagmus
- Elizabeth Jones who has recently qualified as an Orthoptist
- Nikki Espiner who runs the Wobbly Days for Nystagmus Families Facebook group and has a child with nystagmus
- Jenny Rose who has acquired nystagmus associated with ataxia
- Julie Stewart who runs the Wobbly Days for Nystagmus Families Facebook group and has a child with nystagmus
- Jamie Chapman who has congenital nystagmus
- Sara Riggs who is a parent to a child with nystagmus
- Penny Marsh who moderates the Nystagmus Network Facebook group and is a parent to a child with nystagmus
- Leanne Leung who is an optometry student entering the second year at MCPHS University
- Jen Martin who is based in Canada and will help us signpost families from North America to the appropriate support services and to offer advice
“Volunteers help us support our community!” – Richard Wilson, Chairman of the Nystagmus Network
How to contact our volunteers
Each of our new volunteers will play an important part in the work we do at the Nystagmus Network. They will be a direct link to the nystagmus community and they will be the main contacts for our new call back service the charity offers which can be accessed here.
Along with being very active on social media (such as our charity Facebook page) they will also use their experience and expertise to respond to queries submitted through our website here.
The benefits of our volunteers
One of the main benefits of this volunteer service is that anyone who contacts the charity will be able to speak with someone who completely understands their own personal situation. This means that an adult with acquired nystagmus will be able to speak to another adult with the condition, while a parent to a child with congenital nystagmus will be able to speak with another parent. Through this new peer-to-peer support model we believe we will be able to better support the nystagmus community.
We hope you will join us in welcoming all ten of our volunteers to the charity and we are sure they will make a big difference! If you have any questions about our volunteer service you can get in touch with us here.
Have a great day from everyone at the Nystagmus Network!
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