Steve McKay announcement

It is with great sadness that we announce the sudden and unexpected death of Trustee Steve McKay from Newton Abbot in Devon.  Steve suffered a tragic road accident on Thursday 1 December which rendered him unconscious and he never recovered, passing away on Sunday 4 December.  Steve has been a highly-valued Trustee with the Nystagmus Network since 2009 and was responsible for our public relations and social media engagement.

He has made a huge contribution to the charity with his commitment and dedication and his seemingly boundless enthusiasm. At many of our Open Days Steve would astound everyone with his stories of daring escapades in the west country, including driving tractors and having a good go at a range of sports. He was a role model in never letting nystagmus hold him back.  Most importantly for the nystagmus community, it was Steve who came up with the notion of “Wobbly Wednesday” and who saw the potential of an annual awareness day for nystagmus that mixed serious messaging with a strong element of fun and celebration.  He recently shared a video blog with everyone about his love of photography – another of his many talents.

The Trustees and staff of the Nystagmus Network and everyone in the wider nystagmus community will miss Steve very much and our thoughts are with his family at this time.  His inspiration and zest for life and his determination not to let his visual impairment get in his way will live on, especially as Wobbly Wednesday continues to grow year-on-year. Below is a short tribute video to Steve.

Steve’s funeral will be held on Wednesday 21st December at 11.15 at All Saints Church, Highweek, Newton Abbot, followed by refreshments at the Highweek Inn. Family flowers only with donations going to the Nystagmus Network, either by sending a cheque payable to “The Nystagmus Network” to Zealleys, Funeral Directors of 17 Devon Square, Newton Abbot, Devon. TQ12 2HR, or direct via our Just Giving page here.

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Keri Thompson

I am Dan and I joined the Nystagmus Network in 2016 as the Executive Information and Development Manager.

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