Tag: meet up

A postcard to advertise virtual Open Day on 3 October, showing a selection of images of the highlights to come.

Want to meet up?

You’re warmly invited to join us for one or more of our upcoming forums in the run up to Open Day 2020.

Because we know that one of the ‘best bits’ of Open Day is meeting up with others, we’re holding a series of online forums to help you do just that.

In August and September, we’ll be hosting some great opportunities for you to network and chat with other people living with nystagmus or other parents.

Parents’ Forum
A zoom meet up led by Nystagmus Network staff and volunteers. Your chance to network, chat and ask all your burning questions.

Thursday 13 August at 7.30pm
Parents sign up here
Adults’ Forum
A zoom meet up led by Nystagmus Network staff and volunteers. Your chance to meet up and share notes with other adults living with nystagmus.

Thursday 27 August at 6pm
Adults sign up here
Acquired Nystagmus Group  – meet the expert
A zoom meet up led by Nystagmus Network staff and volunteers. Your chance to hear an expert speak about acquired nystagmus and ask questions.

Date and Time to be confirmed
Acquired Nystagmus sign up here

Manchester nystagmus network

The next meeting of our new North West regional group will take place on Saturday 26 January in Manchester. Nystagmus Network trustee, Marie Turnbull will once again be your host and this time she will be joined by our volunteer Education Advocate, Frances Lilley.

We look forward to welcoming back the families and adults who came along to the first meeting in November.

New members are very welcome. For details, please contact us today.

It’s Tuesday – that’s Nystagmus Networking day on Facebook!

We call our charity the Nystagmus Network, because it’s very important to us to help people affected by nystagmus to get together for mutual support. There is no better feeling than meeting someone else who has nystagmus themselves or has a child with nystagmus.

To help members of the nystagmus community get together, this year we have declared every Tuesday nystagmus networking day on our Facebook page.

Each week we nominate areas of the UK from our big alphabetical list and encourage people to leave comments, message each other and organise meet ups. Why not come over to our page and see who you could find in your area?