Tag: members

Nystagmus Network members hold up their voting cards.

Notice of the Nystagmus Network AGM

Following the announcement of a further national rail strike on Saturday 1 October, charity trustees have been obliged to take both Open Day and the AGM online. Notice is hereby amended that the Annual General Meeting (the “Meeting”) of THE NYSTAGMUS NETWORK (the “Charitable Incorporated Organisation or CIO”) will be held online on Saturday 1 October 2022 at 1:45pm.

Members have been emailed the revised agenda which includes the Zoom link to join the meeting. Members have also already received a copy of the Annual Review 2021, including the signed accounts and the minutes from last year’s meeting. If you are unable to attend the meeting online and would like to vote by proxy, please email us at [email protected] to confirm.

Thank you.

On behalf of Tim Cuddeford
Chair of Trustees, Nystagmus Network

If you would like to join us as a member and enjoy the right to vote as well as other member-only benefits, please visit our membership webpage. Thank you.

VMLM image of runners competing in the London Marathon physical race.

Nystagmus Network runners to be part of world’s first 100,000 person marathon

50,000 runners to take on world’s biggest virtual marathon on Sunday 3 October with 50,000 runners to tackle the traditional London Marathon route on the same day

With the results of the 2021 Virgin Money London Marathon Ballot announced recently, the Nystagmus Network has 3 places for anyone who wants to raise crucial funds while making history as part of the world’s first 100,000-person marathon.

Following the announcement that London Marathon Events plans to stage the world’s first 100,000-person on Sunday 3 October, the Nystagmus Network is inviting its supporters across the UK to be a part of it by running to raise funds in its name.  

On Sunday 3 October 50,000 participants will take on the traditional course from London’s Blackheath to The Mall – an increase of more than 7,000 on the previous finisher record – while another 50,000 people around the globe run the 26.2 miles on the course of their choice, anytime from 00:00:00 to 23:59:59 BST, in a virtual event.   

The physical and mental health benefits of being active have been brought sharply into focus during the pandemic, and this biggest-ever London Marathon offers more people than ever before the chance to experience these benefits while raising much-needed funds for charity.  
The Nystagmus Network has THREE places available in the virtual event and is encouraging anyone who was unsuccessful in the ballot to contact them for a chance of taking part.  

Hugh Brasher, Event Director of London Marathon Events, said: “With the national vaccination programme underway, we are delighted to announce our exciting plans for the world’s first 100,000-person marathon. The London Marathon is the most popular marathon on the planet, with a world record 457,861 people applying in the ballot for a place in the 2020 event, and the incredible success of the 2020 virtual event shows the huge appetite to be part of the world’s greatest marathon.”

Nystagmus Network places in the virtual Virgin Money London Marathon are available on a first come, first served basis, but priority will be given to applicants who are members of the charity.

Free webinars on low vision technology


Together with Sight and Sound Technology, the Nystagmus Network is offering 2 free webinars on low vision technology for adults and children with nystagmus.

Thursday 23 April, 6-7pm: Low vision technology for adults with acquired or congenital nystagmus

Thursday 7 May, 6-7pm: Low vision technology for children with nystagmus, with particular focus on access to learning

The webinars will include case studies, product demonstrations and lots of opportunity for Q+A.

Places are free for members of the Nystagmus Network and limited in number. Members have received details today via our newsletter. If you’re not a member and would like to join us as a member and attend one of the webinars, please contact us by phone or email today.

Thank you.