Sue has been associated with the Nystagmus Network since 1991 when her daughter was first diagnosed with congenital nystagmus at 9 weeks old.
- Role: Acting Executive Information and Development Manager
- Email: firstname.lastname@example.org
Until that point Sue, like so many others, had never heard of nystagmus. Sue served as a Trustee and volunteer Parent Adviser for a number of years, whilst supporting her daughter through school, university and into employment. Following a career in adult and community education, Sue joined the Nystagmus Network in August 2015 as a member of staff. She is relishing her role, providing information to parents and teachers, supporting our fundraisers and leading our Wobbly Wednesday campaigns. On social media you will find Sue as ‘nystagmusmum’ where she and her daughter continue to learn more about nystagmus.