Sue has been associated with the Nystagmus Network since 1991 when her daughter was first diagnosed with congenital nystagmus at 9 weeks old.
- Role: Executive Information and Development Manager
- Email: firstname.lastname@example.org
Until that point Sue, like so many others, had never heard of nystagmus. Sue served as a trustee and volunteer parent adviser for a number of years, whilst supporting her daughter through school, university and into employment. Following a career in adult and community education, Sue joined the Nystagmus Network staff team in August 2015 as Information and Communications Officer. She relished her role, providing information to parents and teachers, supporting our fundraisers and leading our Wobbly Wednesday campaigns. On social media you will find Sue as ‘nystagmusmum’ where she and her daughter continue to learn more about nystagmus.
Since January 2018 Sue has been employed as the charity’s Executive Information and Development Manager.