Our trustees
Meet the Nystagmus Network trustees
Vivien Jones
Vivien founded the Nystagmus Network in 1984. She continues to be involved and now serves as the President of the charity.
- Role: Honorary President & trustee
- Email: vivien.jones@nystagmusnet.org
Richard Wilson OBE
Richard has congenital, idiopathic nystagmus. He became a Trustee in 2009 and has been Chairman since June 2011.
- Role: Chairman and trustee
- Email: richard.wilson@nystagmusnet.org
Fola Tayo
Fola has served as treasurer since September 2014 and became honorary secretary in January 2018.
- Role: Honorary secretary and trustee
- Email: fola.tayo@nystagmusnet.org
Vicky Pitman
Vicky has congenital nystagmus and has been a member of the Nystagmus Network for many years. She became a trustee in September 2017 and treasurer in January 2018, putting her skills as a qualified chartered accountant to good use. Vicky has a particular interest in the research activities of the charity, and has taken part in various research projects over the years.
- Role: Trustee
- Email: info@nystagmusnet.org
Frances Lilley
Frances is a volunteer Educational Advocate with the Nystagmus Network and became a Trustee in May 2016. She has a teenage daughter with congenital idiopathic nystagmus.
- Role: Trustee and Educational Advocate
- Email: frances.lilley@nystagmusnet.org
Peter Greenwood
Peter joined the Nystagmus Network as a trustee in May 2016.
- Role: Trustee
- Email: click here
James Ronson
James joined the Nystagmus Network as a trustee in September 2017.
- Role: Trustee
- Email: click here
Claire Brinn
Claire joined the Nystagmus Network as a trustee in September 2017. She is a commercial lawyer with a background in economics.
- Role: Trustee
- Email: click here
Deborah McManamon
Deborah joined the Nystagmus Network as a trustee in September 2017.
- Role: Trustee
- Email: click here
Mitch Pender
Mitch joined the Nystagmus Network as a trustee in September 2017.
- Role: Trustee
- Email: click here
Mary Elliott
Mary joined the Nystagmus Network as a trustee in September 2017.
- Role: Trustee
- Email: click here
Sam Jones
Sam rejoined the Nystagmus Network as a trustee in September 2017 following a sabbatical..
- Role: Trustee
- Email: click here
Marie Turnbull
Marie joined the Nystagmus Network as a trustee in December 2017 and is particularly contributing to our Fundraising Strategy. She is committed to supporting the Nystagmus Network’s sustainable income growth in order that we can support more people with the condition and their families. She is Head of Fundraising at Maggie’s Centres and has been responsible for raising millions of pounds for a variety of charities over the last 15 years. Marie’s eldest son has congenital idiopathic nystagmus.
- Role: Trustee
- Email: click here