Our trustees
Meet the Nystagmus Network trustees
Vivien Jones
Vivien founded the Nystagmus Network in 1984. She continues to be involved and now serves as the President of the charity.
- Role: Honorary President & trustee
- Email: vivien.jones@nystagmusnet.org
Richard Wilson
Richard has congenital, idiopathic nystagmus. He became a Trustee in 2009 and has been Chairman since June 2011.
- Role: Chairman & trustee
- Email: richard.wilson@nystagmusnet.org
Fola Tayo
Fola has been a member of the charity since 2011, and became a trustee and the treasurer in autumn 2014.
- Role: Treasurer & trustee
- Email: fola.tayo@nystagmusnet.org
Graham Dickson
Graham lives in Scotland and works for a large bank.
- Role: Secretary & trustee
- Email: info@nystagmusnet.org
James Taylor
James has been involved with the Nystagmus Network from a young age where he blogged about growing up with the condition.
- Role: Trustee
- Email: james.taylor@nystagmusnet.org
Steve McKay
Steve joined the Nystagmus Network team a few years ago as it seemed the perfect way to use his media skills.
- Role: Trustee
- Email: steve.mckay@nystagmusnet.org
Katy Faulkner
Katy Faulkner has been a member of Nystagmus Network since the late 1980s and a trustee since 1998.
- Role: Trustee
- Email: katy.faulkner@nystagmusnet.org
Frances Lilley
Frances is a volunteer Educational Advocate with the Nystagmus Network and became a Trustee in May 2016. She has a teenage daughter with congenital idiopathic nystagmus.
- Role: Trustee
- Email: frances.lilley@nystagmusnet.org
Claire Entwistle
Claire has been involved with the Nystagmus Network for many years and held various roles at the charity.
- Role: Trustee
- Email: claire.entwistle@nystagmusnet.org
Peter Greenwood
Peter joined the Nystagmus Network as a trustee in May 2016.
- Role: Trustee
- Email: click here
Donna McNaughton
Donna joined the Nystagmus Network as a trustee in May 2016.
- Role: Trustee
- Email: click here
Nigel Allen
Nigel joined the Nystagmus Network as a trustee in May 2016.
- Role: Trustee
- Email: click here