Did you know that pubs raise over £100m every year for charities? PubAid is encouraging pubs, bars and clubs to take part again in March 2019. They can raise money for whichever charity they choose, so let’s get them fundraising for the Nystagmus Network.
To help us get a share of the funds, please ask your local publican to register for the quiz.
The Nystagmus Network could win a small grant of £1,000 in the Ecclesiastical Insurance Christmas draw. To help us win, all you need to do is nominate us. Simple!
Please click here to nominate
Nystagmus Network
Registered Charity Number: 803440
Just think what we could do with an extra £1,000!
Thank you for your support
Throughout December the Nystagmus Network will be reminding everyone just how many wonderful gifts of support and information the charity has to offer, not just at Christmas, but throughout the year.
Each day a new gift will pop up in your nystagmus advent calendar on our blog, on Facebook and on Twitter. Please share these with your friends, family and colleagues and ask them to give just a little back this Christmas if they can.
Please also share our Nystagmus is … this Christmas messages.
Thank you for your support
On Giving Tuesday, to say thank you and as a mark of our appreciation of their support, we’ve invited our top 20 fundraisers of 2018, who were not already members, to join the Nystagmus Network as members in 2019.
Are you one of the chosen ones?
We are delighted that they have agreed to accept. Here’s what our new alumni have been saying:
“I am honoured to be an honorary member.”
“This has absolutely made my day and I’m so very honoured to be thought of.”
“That is wonderfully kind. I would love to get closer to your great work.”
“I think it’s so important to get together, share ideas and discuss experiences, especially for parents of children with nystagmus.”
You can join as a member, too. Please click here.
Why not take the opportunity today to show the charity closest to your heart just how much you care? All donations are gratefully received, especially today, but there are lots of other ways you can lend the Nystagmus Network your support, too:
Those are just some of the ways we’d love you to support us. Thank you for stopping by and showing us your support on Giving Tuesday.
On Blue Friday the Nystagmus Network is delighted to offer a pack of 5 Christmas cards free of charge to the first 10 people who apply.
Help us spread awareness of nystagmus with our cute little cards, designed by Ben and Charlotte, Jack and Lilly at our Open Day.
Strictly only 1 pack per person and you will need to pay £1 p+p.
For more great Blue Friday offers from the Nystagmus Network, please see our Facebook page today.
Remember to shop via easyfundraising when you’re ordering your BlackFriday bargains online. You’ll raise money for The Nystagmus Network with every purchase you make and it’s completely FREE!
To find out more, click easyfundraising.
Merton Vision, London will be holding a patient information day tomorrow, Friday 23 November, from 12 noon to 4pm. Please come along to find out more about nystagmus and albinism. The Nystagmus Network’s Sue will be there to answer all your nystagmus related questions.
Bronagh and Susan – you helped make that happen!
Today the whole nystagmus community says thank you to you.
