In 2025 the Nystagmus Network will be holding events, competitions, activities, workshops and celebrations for our 25 for ’25 year.
January 2025
25 for ’25 – join the year-long party!
Find out how you can take part here
The Great Winter ‘nystagmus’ Get Together including a fun 25 for ’25 quiz, Wednesday 29 January at 5pm.
February 2025
Online get together for people living with Acquired Nystagmus, Wednesday 26 February from 5pm to 6pm. Please email us at [email protected] for an invitation.
Online get together for people living with Congenital Nystagmus, Thursday 27 February from 7pm to 8pm. Please email us at [email protected] for an invitation.
March 2025
The Big Nystagmus Meet Up – Maidstone, Saturday 15 March, 11am to 4pm. An in person event for everyone living with nystagmus or supporting someone who does.
Booking for Maidstone is now closed
An online get together for adults living with Congenital and Acquired Nystagmus on Wednesday 19 March from 5pm. We will be joined by guest speakers from VisionAid to talk about assistive technology and nystagmus and demonstrate some of their products. Please email us at [email protected] for the Zoom link to join.
An online get together for parents of children and young people who have nystagmus on Thursday 20 March from 5pm. We will be joined by guest speakers from VisionAid to talk about assistive technology and nystagmus and demonstrate some of their products. Please email us at [email protected] for the Zoom link to join.
The Bath 50 Ultra Challenge 29 March – details here
April 2025
The Easter 50 Ultra Challenge, 12 April – details here
Online get together for people living with Acquired Nystagmus, Wednesday 30 April at 5pm. Please email us at [email protected] for an invitation.
Online get together for people living with Congenital Nystagmus, Thursday 1 May at 7pm. Please email us at [email protected] for an invitation.
May 2025
The Isle of Wight Ultra Challenge, 3 and 4 May – details here
The Jurassic Coast Ultra Challenge, 17 and 18 May – details here
The London 2 Brighton Ultra Challenge, 24 and 25 May – details here
Online get together for people living with Acquired Nystagmus, date and time TBC. Please email us at [email protected] for an invitation.
Online get together for people living with Congenital Nystagmus, date and time TBC Please email us at [email protected] for an invitation.
June 2025
The Lake District Ultra Challenge, 7 and 8 June – details here
The Great ‘nystagmus’ Summer Get Together – online at 5pm on Wednesday, 18 June. Whether you have nystagmus yourself or care for someone who does, adults, parents, children – all are welcome to join the party. We will be joined by representatives from SeeAble to tell us about VI-friendly holidays and travel. Please email us at [email protected] for a Zoom invitation.
Nystagmus Awareness Day 2025Â – 20 June
A very special occasion and part of our 25 for ’25 year-long celebrations. A children’s competition, presentations, fundraising and lots of new stories.
The Big Nystagmus Meet Up – Birmingham, Saturday 21 June, 11am to 4pm. An in person event for everyone living with nystagmus or supporting someone who does. Find out more about education support, help at work, benefits, registration, the latest research and lots, lots more AND meet other people living with nystagmus, just like you!
Book your place for Birmingham here
The Cotswold Way Ultra Challenge, 21 and 22 June – details here
The Peak District Ultra Challenge, 28 and 29 June – details here
July 2025
The North Downs 50 Ultra Challenge, 12 July – details here
The Gower Peninsula Ultra Challenge, 19 and 20 July – details here
August 2025
The South West Coast 50 Ultra Challenge, 2 August – details here
The London Summer Walk, 23 August – details here
September 2025
The big nystagmus meet up – Leeds takes place, date and time TBC
Booking for Leeds will open soon – please email us at [email protected] so we can let you know
The South Coast Ultra Challenge, 6 and 7 September – details here
The Thames Path Ultra Challenge, 13 and 14 September – details here
The Chiltern 50 Ultra Challenge, 27 September – details here
Online get together for people living with Acquired Nystagmus, date and time TBC. Please email us at [email protected] for an invitation.
Online get together for people living with Congenital Nystagmus, date and time TBC. Please email us at [email protected] for an invitation.
Online get together for parents and carers, date and time TBC. Please email us at [email protected] for an invitation.
October 2025
The Kent Downs 50 Ultra Challenge, 11 October – details here
Online get together for people living with Acquired Nystagmus, date and time TBC. Please email us at [email protected] for an invitation.
Online get together for people living with Congenital Nystagmus, date and time TBC. Please email us at [email protected] for an invitation.
November 2025
The International Nystagmus Symposium 2025 will take place on Friday 7 November. Registration and abstract submission will open soon.
Please note this is not a patient event.
Online get together for people living with Acquired Nystagmus, date and time TBC. Please email us at [email protected] for an invitation.
Online get together for people living with Congenital Nystagmus, date and time TBC. Please email us at [email protected] for an invitation.
Online get together for parents and carers, date and time TBC. Please email us at [email protected] for an invitation.
December 2025
Online get together for people living with Acquired Nystagmus, date and time TBC. Please email us at [email protected] for an invitation.
Online get together for people living with Congenital Nystagmus, date and time TBC. Please email us at [email protected] for an invitation.
Online get together for parents and carers, date and time TBC. Please email us at [email protected] for an invitation.