Please vote for Ben


Ben Haynes is a talented young musician who just happens to have albinism and nystagmus. Ben has entered a music competition and needs your vote. We’ll let Ben explain … Hi everyone. I’m a self employed musician from Nottingham with Albinism and Nystagmus. I performed a few songs at the Nystagmus Network Open day in … Continue reading Please vote for Ben

You could win £450 for the Nystagmus Network


SMALL CHARITY WEEK begins on Monday 18 June. If the Nystagmus Network is your favourite small charity, why not enter the Facebook, Twitter or Instagram competition to help us win £450? How to enter: Take a photo of yourself holding up your Small Charity Week poster that reads: “I love Nystagmus Network because (and say … Continue reading You could win £450 for the Nystagmus Network

Manchester half marathon places available


Would you like to run the Manchester half marathon this October to raise money for the Nystagmus Network? The race takes places on Sunday 14 October. It starts and finishes by the iconic Emirates Old Trafford, Lancashire Cricket Club. The event boasts one of the fastest, flattest and friendliest courses on a completely closed road route, through the … Continue reading Manchester half marathon places available

Sam to run London 10k for the Nystagmus Network


Sam Jones, Nystagmus Network trustee and runner, introduces himself. I was born in 1983 with Cone Dysfunction and Nystagmus. Because of me, my mother, Vivien Jones, founded the Nystagmus Network. Next year I’ll be running my third London marathon to raise funds for the charity, so I’ve decided to run the London Vitality 10k and … Continue reading Sam to run London 10k for the Nystagmus Network

Nystagmus Network article published


To achieve our objective of raising greater awareness of nystagmus, the charity publishes articles from time to time on different aspects of the condition. The article we submitted for publication most recently is entitled Wobbly Eyes and explains nystagmus in language a young child can understand. The text is adapted from our free to download … Continue reading Nystagmus Network article published

Sponsors sought for Open Day 2018


The biggest nystagmus event of the year takes place on Saturday, 29 September in Birmingham. This is our annual Open Day, where 200 nystagmus families get together to talk about research, education, support, assistive technology, mobility, education and general day to day living with a visual impairment. The Nystagmus Network is seeking sponsorship from commercial … Continue reading Sponsors sought for Open Day 2018

Fight for Sight partners with the Nystagmus Network for its next grant round


Fight for Sight has today announced a call for Small Grant Award applications. The UK’s leading eye research charity is this year able to offer thirteen awards to fund sight saving clinical research, ten of which are being jointly funded with other charities. NEW THIS YEAR Fight for Sight / Nystagmus Network offer TWO Small … Continue reading Fight for Sight partners with the Nystagmus Network for its next grant round