Nystagmus acquired after a stroke?


Professor Fiona Rowe from the Institute of Psychology, Health and Society at the University of Liverpool is currently seeking patients to take part in an online anonymous questionnaire about eye movement disorders. An expert in post stroke vision, Professor Rowe would like to recruit adult patients with acquired nystagmus to help determine future patient treatment … Continue reading Nystagmus acquired after a stroke?

Don’t forget us, please!


As national ‘Remember a Charity Week’ begins, the Nystagmus Network would like to make a plea to all our members and supporters to consider remembering us in your wills. We understand that your family and friends must always come first. All we ask is that, once you have looked after those closest to you, you … Continue reading Don’t forget us, please!

Matt is joining the abseil


Matthew Dawson will be abseiling down the UK’s allest piece of public art on 23 September to raise much needed funding for nystagmus research at Moorfields and UCL. He is joining Team Nystagmus Network Abseil at the suggestion of his wife and for his young son, Owen, who has nystagmus. Apparently, some of Matt’s sponsors … Continue reading Matt is joining the abseil

Guest post: Harry’s back at school!


Over the summer holidays we followed Harry’s progress as he underwent the Anderson Kestenbaum procedure to address the head turn associated with his nullpoint. Today we hear from Harry’s Dad, Ian, how Harry is getting on, 4 weeks after his operation. Ian writes: “Harry’s eyes are now nothing but a slight irritation and, apart from … Continue reading Guest post: Harry’s back at school!

QAC information days for professionals


Two ‘Information Days for Professionals’ events at Queen Alexandra College (QAC) may be of interest to Connexions and Careers Advisors, DEA’s, Work Coaches, Employment Advisors and Social Workers, Teachers and Learning Support Assistants, SENCOs, Sensory Support Teams, Local Education Authority Employees. These FREE events provide the opportunity to meet staff and students and discover more about Queen Alexandra College. The dates … Continue reading QAC information days for professionals

Roselle is coming to Open Day


Because there is such a close link between albinism and nystagmus, the Nystagmus Network works closely with Albinism Fellowship UK. Chair of AFUK, Roselle Potts, will be joining us this year at Open Day to speak with researchers, to find out more about our education advocacy service and chat with families affected by ocular or oculocutaneous … Continue reading Roselle is coming to Open Day

Does albinism protect against AMD?


We are seeking potential research candidates on behalf of researchers in Southampton (Jay Self and Helena Lee) who must be over the age of 60 and have any form of albinism. Thank you to those who have already responded. We have already found 12 people, but we really need 20 for a viable study. If … Continue reading Does albinism protect against AMD?