Meet Sue at VIEW


This Thursday, Sue from Nystagmus Network, will be attending the annual VIEW conference for teachers and specialists in educating visually impaired children and young people. The event takes place over two days in Birmingham. Delegates will find Sue in the exhibition area, eager to demonstrate the support and information the Nystagmus Network has to offer … Continue reading Meet Sue at VIEW

Sue attends Partially Sighted Society Conference 2018


Last Friday Sue attended the PSS very first Sight Loss conference in Doncaster on behalf of the Nystagmus Network. The day was attended by around 100 people with visual impairment, their family members and friends, carers and health professionals. It was an opportunity to hear from senior medical and research specialists as well as listen … Continue reading Sue attends Partially Sighted Society Conference 2018

Open Day 2018 – booking open soon


We are just finalising details of our annual Open Day 2018. We shall once again be in central Birmingham. The date is Saturday, 29 September. The venue is the same as last year, the MacDonald Burlington Hotel, across the road from Grand Central. We already have some very exciting speakers lined up. We will also … Continue reading Open Day 2018 – booking open soon

David Katz – our special guest speaker at Open Day 2018


We are delighted to announce that David Katz, the internationally acclaimed photographer, will be joining us as our special guest speaker at our annual Open Day on 29 September. David was with us all in spirit last year, of course, when we were honoured and privileged to have been granted permission to premier his amazing … Continue reading David Katz – our special guest speaker at Open Day 2018

Marsha de Cordova MP – our Open Day keynote speaker


We are delighted to announce that we shall be joined on Open Day this year by Shadow Minister for Disabilities, Marsha de Cordova. Marsha has nystagmus and is severely sight impaired. She recently explained to BBC Radio 4’s Intouch programme how she manages her vision problem as part of her busy professional life. The photograph … Continue reading Marsha de Cordova MP – our Open Day keynote speaker

We can help with your bucket list


Ever wanted to try the London to Brighton cycle run? Well, now you can. Skyline Events and the Nystagmus Network can make your dream come true. Watch the video here. Apply for your place by clicking this link. Let us know so we can send you your free Nystagmus Network T-shirt.    

Friday Fundraisers on Facebook


Every Friday on our Facebook page we celebrate the achievements of the week’s top fundraiser, feature the story of one of our upcoming fundraisers or signpost you to fabulous and fun fundraising opportunities. So please join us every Friday on Facebook and help us say a huge thank you to all our wonderful fundraisers. Our … Continue reading Friday Fundraisers on Facebook

Sue visits Queen’s Medical Centre, Nottingham


Dr Kong Yien Chin, a clinical scientist working in the Evoked Potentials Clinic at Nottingham’s Queen’s Medical Centre, invited the Nystagmus Network’s Sue Ricketts to view the clinic, meet the team and discuss potential collaboration opportunities on nystagmus research projects. Sue was very impressed by what she saw. The last time she had stepped inside … Continue reading Sue visits Queen’s Medical Centre, Nottingham

Thursday is research news day on Facebook


Every Thursday on our Facebook page we publish the latest news on nystagmus research or publish details of new nystagmus trials that you can take part in. We are currently supporting these trials: The Southampton University Hospital team need to find people with albinism and nystagmus, aged over 60 so that Mr Jay Self and … Continue reading Thursday is research news day on Facebook

Every Wednesday is Nystagmus Awareness Day on Facebook


We started national and international Nystagmus Awareness Day, also known as Wobbly Wednesday, back in 2013. But every Wednesday is awareness day on our Facebook page. This means you can talk about any aspect of nystagmus you choose and ask any questions you like. This is your forum to talk about everything to do with … Continue reading Every Wednesday is Nystagmus Awareness Day on Facebook