Our New Year resolutions


… and our promises to you, the nystagmus community Thanks to your support and generosity throughout 2019, the Nystagmus Network can confidently resolve and promise that in 2020 we will ONE – provide even more support and information for everyone living with CN or AN, their friends and family and the people helping them to … Continue reading Our New Year resolutions

Thomas and Ben are #NystagmusStars


Today we have 2 #NystagmusStars for the price of 1! Their Mum says: “These are my two nystagmus stars, Thomas and Ben, who are confident, happy and loving boys.”  To nominate your #NystagmusStar or to make a donation to help the Nystagmus Network support lots more people to reach their potential, please click here. Thank … Continue reading Thomas and Ben are #NystagmusStars

Phoenix is a #NystagmusStar


Phoenix is 12. He has nystagmus and albinism. At a recent parents’ evening his teachers said he is exceeding most of his targets and they had nothing but praise for him. His Mum is very proud of him, too. To nominate your #NystagmusStar or to make a donation to help the Nystagmus Network support lots … Continue reading Phoenix is a #NystagmusStar

Is it time to review partially sighted or blind certification?


GUEST POST: Founder of Visualise Training and Consultancy and Seeing Beyond the Eyes CET roadshow lead, Daniel Williams has retinitis pigmentosa. In this article, he asks if it is time for a change when it comes to Certification of Vision Impairment (CVI). Whilst recognition that you have low vision is an advantage, when it becomes … Continue reading Is it time to review partially sighted or blind certification?

Ryan is a #NystagmusStar


Following a difficult birth, Ryan has nystagmus and is severely partially sighted. According to his Mum, he’s the funniest, most sensitive little man ever and whoever meets Ryan falls instantly in love with him, because he smiles from the start of the day to the end. She calls him “my number one star, my boy, … Continue reading Ryan is a #NystagmusStar

Sarah is a #NystagmusStar


Sarah is an accomplished sports woman, mother and soon to be driver! She has never let nystagmus prevent her from trying anything she has wanted to do. Sarah is nominated by John who says: “She is my star.” To nominate your #NystagmusStar or to make a donation to help the Nystagmus Network support lots more … Continue reading Sarah is a #NystagmusStar