More details about the fabulous Nystagmus Network Ball Sunday 25 August, Birmingham 7pm, drinks upon arrival, 7.15pm, meal to be served, please see menu choices below. Games will be played before and after the meal, with the wonderful Wil Maudsley as our own Games Master (come prepared to laugh!!!). Disco until 11pm-ish The brilliant Richard … Continue reading Guest post from Anne-Marie
A paper relating to a research project by members of the Cardiff University team and others, which the Nystagmus Network funded, has been formally published this week. The report describes an algorithm which takes an eye-tracking recording and automatically separates it into its component parts (quick phases, slow phases and foveations*), allowing several measures related … Continue reading Nystagmus Network funding leads to discovery of new algorithm
The Nystagmus Network is delighted to reveal the destination and spectacular venue for this year’s Open Day on Saturday 28 September. We shall once again be coming to Wales. Space has been reserved at the iconic Principality Stadium, Cardiff. Join us in the Millennium Lounge for this year’s inspirational talks and presentations and meet up … Continue reading Just say yes to Cardiff!
Vision impaired singer songwriter, Ben Haynes, will be headlining at the Nystagmus Network Open Day 2019 on Saturday 28 September. Meet Ben. Hear him talk about his early days as a young person with nystagmus, playing drums in the garage until his big break into music. Ben will also play a live acoustic set for … Continue reading Only Ben can make this world right
Daniel Williams is our keynote speaker at Open Day 2019. Daniel is the founder of Visualise Training and Consultancy, a company which delivers sight loss awareness to employers. Daniel, who is gradually losing his own sight due to Retinitis Pigmentosa, says: “I am passionate about disability rights and making mainstream services accessible to all, enabling … Continue reading Introducing Daniel
Author of the 2019 book ‘Can I tell you about Nystagmus?’ will be at the Nystagmus Network Open Day on Saturday 28 September. Amber, the leading character in Nadine’s book, was inspired by her daughter, who has nystagmus. At Open Day Nadine will be happy to chat with parents and share experiences of parenting a … Continue reading Meet Nadine at Open Day
This year for Nystagmus Awareness Day and ‘wobbly week’ the Nystagmus Network is joining forces with parkrun UK to offer you the opportunity to get out into your local park and walk or run for nystagmus awareness. You can take part in parkrun just about anywhere in the country, every week of the year. But … Continue reading parkrun for Nystagmus Awareness Day
Huge congratulations and thanks to everyone who turned out on a very blustery Sunday morning to walk 4 or 14 miles around the streets of London to raise money for pioneering nystagmus research at Moorfields and UCL. The final total is still being counted, but we can report that together you have so far raised … Continue reading Eye to Eye – you smashed it!
Sue represented the charity once again this year at the annual VIEW conference in Birmingham on 14 and 15 March. VIEW represents qualified teachers supporting visually children and young people in schools across the UK. Sue says: “The Nystagmus Network stand was very busy this year and I spoke to lots of newly qualified and … Continue reading Sue attends VIEW 2019
No one here at the Nystagmus Network can actually remember the last time there was an increase in our annual membership subscriptions. That means it must have been at least a decade ago. But with the charity’s work and reach expanding all the time as we seek to meet the needs of an ever growing … Continue reading Membership subscriptions increase from 1 April