Research funding will use iPads to identify the best method to manage nystagmus

Fight for Sight and The Nystagmus Network have announced funding for three exciting nystagmus research projects at the Nystagmus Network Conference, which is taking place today during National Eye Health Week 2018. In total £30,000 in funding will be used for projects bringing benefits to children and adults living with the condition, which is characterised … Continue reading Research funding will use iPads to identify the best method to manage nystagmus

UK Nystagmus Research Meeting 2018

Researchers and clinicians from Cardiff, London, Plymouth, Sheffield and Southampton are meeting today to plan the way ahead for nystagmus research. Our medical experts are joined by charity trustees and our funding partners, Fight for Sight. The half day conference, hosted by the Nystagmus Network, takes place in Birmingham today ahead of the charity’s Open … Continue reading UK Nystagmus Research Meeting 2018

Vanessa and Richard complete their abseil

Vanessa and Richard were away on holiday when they heard that the Nystagmus Network were looking for people to abseil down the UK’s tallest piece of public art to raise money for nystagmus research at Moorfields and UCL. They signed up straight away. The big day came, but the weather was certainly not what they’d … Continue reading Vanessa and Richard complete their abseil

A research focus for Open Day

This year’s Open Day has a huge emphasis on nystagmus research. Throughout the day delegates will be able to visit our Research Hub and speak with researchers and clinicians from Moorfields, London, the School of Optometry and Vision Sciences at Cardiff University, the School of Ophthalmology and Orthoptics at the University of Sheffield and the … Continue reading A research focus for Open Day

Yorkshire 3 Peaks – completed!

Steph and her team completed the Yorkshire 3 Peaks Challenge on Saturday in 11 hours 45 minutes. Well done, team! They were doing this in honour of Steph’s young son, Henry, who has nystagmus and they’ve so far raised over £1,000 for the Nystagmus Network! Thank you from everyone at the charity. You can still … Continue reading Yorkshire 3 Peaks – completed!

They did it!

Although the Team Nystagmus Network / Moorfields Eye Charity fundraising abseil at the ArcelorMittal Orbit couldn’t go ahead on Sunday morning as planned due to heavy rain and high winds, Vicki and Tom took advantage of some available slots on Saturday morning and took their leap for nystagmus research then. Congratulations, Vicki and Tom! You’re … Continue reading They did it!

Sign up to the Nystagmus Network lottery

Did you know that for just £1 per week you could be in with a chance to win £25,000? You could, if you signed up to the Nystagmus Network lottery. The even better news is that, once all the prizes are paid for, all profits come directly to the Nystagmus Network as a donation. If … Continue reading Sign up to the Nystagmus Network lottery

The abseil is this weekend!

This Sunday morning Claire A, Claire B, Glen, Matt, Richard B, Richard P, Tom, Vanessa, Vicki and Vicky will be scaling down the UK’s tallest piece of public art, the ArcelorMittal Orbit at the Queen Elizabeth Olympic Park to raise money for nystagmus research at Moorfields and University College, London. Our 10 intrepid Team Nystagmus Network … Continue reading The abseil is this weekend!