Nystagmus is … a guide for adults


A fabulous new publication, Nystagmus is … a guide for adults, is now available FREE from our online shop. The booklet is inspired by the wonderful Roger (pictured), who first contacted us with the idea last Nystagmus Awareness Day. He began with the words: “I have enjoyed nystagmus for nearly 80 years” and went on to outline … Continue reading Nystagmus is … a guide for adults

A YouGov nystagmus awareness survey


The Nystagmus Network commissioned a YouGov survey in May 2020, ahead of Nystagmus Awareness Day on 20 June, to see how aware the UK population is of nystagmus. The survey was free of charge, thanks to a competition, run by the Small Charities Coalition of which we are a member. The headline results 82% of … Continue reading A YouGov nystagmus awareness survey

Boost it for June


WALK, JOG, or RUN Anywhere – Anytime… THROUGHOUT JUNE  From 50 km up to 500 km… You choose Your challenge Sign Up Now… With relaxation of the restrictions on travel and exercise, June is ideal to enjoy the great outdoors, push yourself further, and get into shape for the summer! Join our virtual event – You choose Your challenge from 50km up … Continue reading Boost it for June

The Nystagmus Network receives £8,000 from the National Lottery to increase our support services


The Nystagmus Network is delighted to have been awarded just over £8,000 in National Lottery funding to underpin its work supporting adults with nystagmus. The charity will use the funding to expand our support services to meet the greater needs of the nystagmus community during the pandemic and particularly to reach those who are isolated … Continue reading The Nystagmus Network receives £8,000 from the National Lottery to increase our support services

Sue’s 2.6 challenge – complete!


Sue has finished her 2.6 challenge ahead of schedule. She has knitted 2.6 special edition Nystagmus Network mascots in less than 26 days! Each mascot wears running kit to signify that the 2.6 challenge was intended to replace this year’s London Marathon, cancelled due to the pandemic. So far, Sue has raised £315 in sponsorship … Continue reading Sue’s 2.6 challenge – complete!

Nystagmus Network launches webinar series for clinicians


Nystagmus Network  launches online CET webinars for eye-care professionals The Nystagmus Network charity was founded in 1984 to support patients living with the condition. They currently have 500 members but estimate there are more than 64,000 patients in the UK living with the condition that they would love to support. This is why they want … Continue reading Nystagmus Network launches webinar series for clinicians

Join our virtual quiz night


Every Saturday at 7pm Please join us for our virtual quiz night every Saturday at 7pm. Get everyone together in one room, sign up, log in and away you go. It’s great fun! There are cash prizes for 1st, 2nd and 3rd placed players. Thank you for your support. Taking part in the quiz is … Continue reading Join our virtual quiz night

Technology use in young people with impaired vision: a new study


Guest post from Saima Begum, University College London I am a student at University College London, studying at the Institute of Education and I am emailing to ask for your help with my Masters research project into Vision Impairment. This project aims to examine technology use in young people with vision impairment, and whether this … Continue reading Technology use in young people with impaired vision: a new study

The impact of COVID-19 on visually impaired children


A guest post from Rosaleen Dempsey, RNIB Hi there I am from the children’s services in RNIB. Wonder if you would mind sharing a survey for families about the impact of the COVID-19 crisis on the education and development of children with VI. Survey has been designed by partners in the sight loss sector and … Continue reading The impact of COVID-19 on visually impaired children