Nystagmus Network Open Day – Saturday 25 September We promise a packed programme of presentations, inspirational speakers, research updates, videos, workshops, forums, competitions and so much more – all available wherever you are. Plus, you’re warmly invited to join a fabulous live and interactive networking event. The theme for this year is ‘How amazing are you?‘. We’ll be celebrating … Continue reading Register now for Open Day 2021
Guide Dogs this week launch a new service, Tech for All, to help children with a vision impairment access their own devices at home – to support learning, or simply to have fun and explore the interests and activities they enjoy. Tech for All will provide iPads to visually impaired children aged 3-18 across the … Continue reading Free iPads or iPhones for children with a vision impairment aged 3-18
New CET e-learning enhances skills and accessibility when assisting patients with sight loss A new CET e-learning course for optical professionals to develop practical skills when dealing with patients with a visual impairment has been launched by award-winning social businessman and Nystagmus Network trustee, Dan Williams of Visualise Training and Consultancy. ‘Seeing Beyond the Eyes’ … Continue reading Seeing Beyond The Eyes
A new e-learning course to develop knowledge, skills and confidence when assisting people with a visual impairment has been launched by award-winning social businessman and Nystagmus Network trustee, Dan Williams of Visualise Training and Consultancy. ‘Visual Impairment Awareness for All’ is ideal for anyone who regularly interacts with people living with visual impairment as it … Continue reading New e-learning course enhances skills when assisting people with sight loss
Why we need a pathway Getting a diagnosis of nystagmus for a small baby is an anxious time if you’ve never heard of the condition before. It’s even harder if all the medical information seems a bit bewildering and you don’t know where else to turn for support. That’s why NUKE (the Nystagmus UK research … Continue reading The Nystagmus Care Pathway
Aniridia UK will host the European Aniridia Conference online from 31 July to 1 August 2021 The event will combine excellence in aniridia research and clinical practice, plus patient engagement. Highlights include: Talks by: Tony Moore, Cheryl Gregory Evans, Dominique Brémond-Gignac, Christina Grupcheva, Russell Foster, David Price, Daniel Aberdam, Neil Lagali, Ali Djalilian, Julie Daniels, … Continue reading The European Aniridia Conference
Nystagmus Network wins £1,000 Movement for Good award The Nystagmus Network has won a £1,000 Movement for Good award from Ecclesiastical Insurance Group thanks to nominations from the public. The Nystagmus Network is one of 500 winners in specialist insurer Ecclesiastical’s Movement for Good awards, which is giving £1million to charities this summer. Although at … Continue reading Nystagmus Network wins £1,000 Movement for Good award
The Nystagmus Network charity name and logo are now Registered Trade Marks thanks to the advice and support of our friends Simon, Sarah, Akber and Ella at the London law firm, Fox Williams LLP. Begun as a self-help group in 1984 and a registered charity in England and Wales since 1990, the Nystagmus Network has … Continue reading Nystagmus Network® Trade Marks
I was born with CN and for the most part consider myself to be lucky compared to many in our group. Service to others has been a significant part of my life. Recently, as Chief of Staff of my state’s second largest agency I was responsible for leading the development of a comprehensive employee wellness … Continue reading How amazing is Edwin?
Wyatt has always had this positive outlook. He is determined, smart, and gives EVERYTHING his all! When he was 4 months old he was diagnosed with Nystagmus. We as parents were told that he would never ride a bike, play sports, or even read a book. Everything he would do would be a challenge for … Continue reading How amazing is Wyatt?