What can we say about Mike that hasn’t been said already? He endured so much for the nystagmus cause this year – including very wet feet, a constantly rumbling tummy and often only the company of chickens! But Mike still walked 3000 miles to raise £2,500 for the Nystagmus Network. A-m-a-z-i-n-g! And after all that … Continue reading Thank you, Mike
Thank you to everyone who has ordered a woolly nystagmus mascot this year. We are now officially sold out. Together you have raised £360 and given new homes to 72 mascots. THANK YOU! Huge thanks, too, to our volunteers, Lynda and Sue, for all the knitting.
Nystagmus can be challenging to diagnose in children and often the level of sight loss a newly diagnosed child will experience is unclear, leading to significant anxiety for parents who fear their child will develop severe visual impairment. Thanks to the work of Dr Melvyn Thomas and the research team at the University of Leicester … Continue reading Thank you, Mervyn
Inspired by her 2 younger sisters, who both have nystagmus, final year geography student, Libby chose to explore the experiences of young visually impaired adults in their local space and environment and the impacts on identity formation for her dissertation. You can read more about Libby’s research here: https://nystagmusnetwork.org/can-you-help-libby-with-her-research/ Thank you for being a great ‘big … Continue reading Thank you, Libby
Living with the triple whammy of nystagmus, myopia and astigmatism, Julia is an accomplished musician. She also sings in choirs, which often happens in poorly lit churches. In her blog post, Julia regaled us with hilarious stories of missing her applause and mistakenly stealing someone else’s limelight all because she cannot see the conductor. She … Continue reading Thank you, Julia
Josh can’t see rain – can you? Josh was born with nystagmus and ocular albinism, but he hasn’t let that hold him back. Josh has been a primary school teacher for 7 years, completed his masters, got grade 8 piano and regularly sings in City of Birmingham Choir at Symphony Hall. Josh has some very … Continue reading Thank you, Josh
Jaina joined the Nystagmus Network team in August 2020 as an intern, spending some time to gain experience of working in a small charity. Jaina was hugely helpful in the run up to virtual Open Day 2020 and you may have ‘met’ her in our forums. Jaina says: “A huge thank you for this opportunity, … Continue reading Thank you, Jaina
For Halloween 2020 Emma and her very determined family held a coffee, cake and crafts fundraiser for the Nystagmus Network. All COVID-19 restrictions were followed and the family raised £400. An amazing effort! Thank you so much! At Halloween 2020 Emma and her very determined family held a coffee, cake and crafts fundraiser (remember those?) … Continue reading Thank you, Emma
Bring a little joy to far away friends and family this festive season with a Nystagmus Network digital Christmas card. 6 designs to choose from. Digital Christmas cards here
Both Claire and her young son, Zac have nystagmus. In 2019 Claire decided she was going to do a sky dive for the Nystagmus Network. Postponements because of the weather and then again this year because of lockdown, meant Claire was waiting nervously nearly a whole year before she could make her leap. But she … Continue reading Thank you, Claire
