Free run places available


Would you like a FREE RUN PLACE in the Royal Parks Half Marathon? On Sunday 11 April 2021 the Royal Parks Half takes place for runners in their community. Track your 13.1 miles in your local area. This will be an unparalleled digital experience which mirrors as much of the in-person race as possible, including … Continue reading Free run places available

Introducing Ian


Ian Springett joined the Nystagmus Network staff team in January 2021. Following a career in public service, most recently as an ECLO (Eye Clinic Liaison Officer) and Complaints Officer with the NHS and before that serving as a Police Officer for 30 years, Ian has settled quickly into his new role with the charity as … Continue reading Introducing Ian

We’re back!


Nystagmus Network woolly nystagmus mascots are now back in stock in our online shop. Dressed in warm woolly hats and scarves, each mascot has its own individual skin and hair colour, nystagmus and a null point. Thank you to our wonderful volunteer knitter, Lynda. Order your nystagmus mascot here Or, if you prefer, you can … Continue reading We’re back!

Congratulations, Dr Thomas


The Nystagmus Network is sending huge congratulations to the newly qualified Dr Nikita Thomas. Dr Thomas achieved her PhD this month. Nikita is well known to members of the Nystagmus Network for her engaging personality and confident presentations on her latest nystagmus research. On World Sight Day 2020, Nikita was named an Eye Health Hero … Continue reading Congratulations, Dr Thomas

Notes from the January forum for adults living with CN


It was so wonderful to see and hear people exchanging experiences and tips on Tuesday evening, 26 January (morning for those who joined us from New Zealand!).  Here are just a few notes from our discussions. Jigsaws online There are lots of websites offering jigsaws to do onscreen. I tried TheJigsawPuzzles.com.You can change the background … Continue reading Notes from the January forum for adults living with CN

Vision impairment and employment – a research project


Guest Post: Dr. Liz Ellis, VICTAR, University of Birmingham The Vision Impairment Centre for Teaching and Research (VICTAR) at the University of Birmingham is conducting research to understand more about the factors which contribute to employment outcomes (the good and not so good) for individuals with a visual impairment, living and/or working in Greater London. … Continue reading Vision impairment and employment – a research project

Sam’s challenge of a lifetime


Nystagmus Network Trustee, Sam Jones will be cycling 500 miles around the North Coast of Scotland in June this year to raise money for the Nystagmus Network. It’s the ultimate road trip and the challenge of a lifetime. What people may not realise is that Sam has nystagmus himself and is acually the reason the … Continue reading Sam’s challenge of a lifetime

Nystagmus does cause visual crowding – it’s official


It’s long been understood that people with nystagmus can struggle to pick out objects from an image or face in a crowd. That’s a phenomenon called visual crowding. But how does nystagmus cause this? Now Vijay, Taylor, nystagmus researcher at London’s Moorfields Eye Hospital and University College London has shown that the eye movements associated … Continue reading Nystagmus does cause visual crowding – it’s official

Notes from the January AN/Oscillopsia Forum


With people joining us from both sides of the Atlantic, there was some very interesting discussion at the most recent Nystagmus Network forum for adults with Acquired Nystagmus and Oscillopsia. Symptoms It is always reassuring, particularly for new members of the group, to hear the wide range of symptoms others are experiencing. These range far … Continue reading Notes from the January AN/Oscillopsia Forum

Notes from the January Parent Forum


The Nystagmus Network runs regular virtual get togethers for parents and carers on Zoom. Here’s Sue’s report on the January event, which focused on homeschooling. It was lovely to see Mums and Dads on the Nystagmus Network Parents’ Forum this month. You’re all doing a great job on the homeschooling front, but I think it’s … Continue reading Notes from the January Parent Forum