Research into decision making for genetic testing


A team at Cardiff University is conducting a study to identify the factors that influence the decisions made by genetic counselling patients about proceeding with genetic tests. They are looking to recruit patients who are undergoing genetic testing or pre-natal testing to take part in the study by recording their thoughts and feelings as they go through the … Continue reading Research into decision making for genetic testing

Parents of adolescents with nystagmus: research participation opportunity


Ifigeneia Manitsa BEd, MSc, AFHEA (pictured) is a Psychology Researcher at Kingston University London. Her research is about the social and academic inclusion of adolescents with and without visual impairments.  Ifigeneia has a Degree in Primary Education and a Masters in Special Education. Visual impairment has been her field of expertise for the past 7 years. Her latest … Continue reading Parents of adolescents with nystagmus: research participation opportunity

2020 Year of Vision


The Nystagmus Network has signed up to the Vision UK 2020 Year of Vision 5 priorities. Vision UK is the independent partnership organisation which works for the benefit of blind and partially sighted people, their communities and the general population, including those at risk of sight loss. They work with national and regional organisations in … Continue reading 2020 Year of Vision

Circadian Therapeutics Sleep Health Survey


Circadian Therapeutics are seeking vision-impaired individuals between 18 – 70 years to participate in a research project exploring experiences of sleep and daily rhythm disruption. In partnership with the Blind Veterans UK, Circadian Therapeutics is running a survey to identify sleep and circadian disruption experienced by vision impaired individuals in order to provide informed feedback … Continue reading Circadian Therapeutics Sleep Health Survey

Research on nystagmus and glaucoma


As previously reported here, the Research Unit for Nystagmus at Cardiff University has been looking for people with nystagmus to take part in a survey that aimed to further their understanding of the number of people with nystagmus who have also been diagnosed with glaucoma. Nikita Thomas, of Cardiff’s School of Optometry and Vision Sciences … Continue reading Research on nystagmus and glaucoma

Does size really matter? Making it as a small charity.


What Charity asked the Nystagmus Network for tips on how a small charity can make a big impact. 1.What encouraged you to start your charity?  The Nystagmus Network was founded in the early 1980s, by Vivien Jones, a young mum with a baby boy called Sam who was diagnosed with nystagmus when he was 3 … Continue reading Does size really matter? Making it as a small charity.

Blind in Business event


“Expectations Exceeded” Parent and family workshop run by Friends of Moorfields and Blind in Business Friday 22 May 2020 2pm to 5pm Kemp House (next to Moorfields Eye Hospital) 152-160 City Road, EC1V 2NX The Boardroom, 4th Floor Parents, carers, young people, friends and family are all welcome to attend! Learn and speak with blind … Continue reading Blind in Business event