Parent Power, funded by the National Lottery Community Fund The Nystagmus Network invites parents and carers to attend our next Parent Power education workshop. Venue: TBC, Cambridge Date: Saturday 25 January Time: 10am to 2pm The aim of the project is to empower parents and carers with legally based information on how to advocate for … Continue reading Parent Power comes to Cambridge
Parent Power, funded by the National Lottery Community Fund The Nystagmus Network invites parents and carers to attend our next Parent Power education workshop. Venue: Can Mezzanine, Borough, London Date: Saturday 23 November Time: 9.30am to 1pm The aim of the project is to empower parents and carers with legally based information on how to … Continue reading Parent Power comes to London
Nadine Neckles wrote the book ‘Can I tell you about Nystagmus?’ so that her young daughter, who has nystagmus, could live in a world more nystagmus aware. ‘Can I tell you about nystagmus‘ is a useful book for both carers of, and people with nystagmus. The user-friendliness of the book aids understanding of nystagmus, gives useful tips … Continue reading Can I tell you about Nystagmus?
Please remember to tick the Gift Aid box when donating to charity. It makes such a difference to small charities like us, with an extra 25p coming our way for every £1 you give. This includes membership subscriptions. Please CLICK HERE to complete your Gift Aid declaration. Thank you
Thanks go to Mike Hughes, our volunteer benefits adviser and all round expert on everything to do with benefits and nystagmus. Mike has updated his booklet on DLA, PIP and Nystagmus, so if you missed Mike’s workshops at Open Day, make sure you download your free copy of the latest version of his materials. Download … Continue reading Publication update
GUEST POST by Elin I’ve always had an honest approach when it comes to writing about sight loss. If you scour through my blog’s archives, you’ll find posts on anxiety, loneliness, bullying and the misconceptions, just to name a few. I think that the fact I’ve offered a window view into these strands of my … Continue reading SIGHT LOSS: MY UNSPOKEN REALITY
In 2019 20 Nystagmus Network supporters, their friends and family members raised £11,500 for nystagmus research by taking part in the Eye to Eye walk. We’re doing it all once more in 2020, but we need your help to raise even more money for nystagmus research at Moorfields Eye Hospital and University College, London. You … Continue reading Could you walk eye to eye for nystagmus research?
Nystagmus Network Christmas cards are now on sale in our online shop. Choose from two great designs: Tis the Season to be Jolly and Let it Snow. The cards come in packs of 10 with envelopes and feature the charity logo on the back. The greeting inside the card is Happy Christmas. The cards are … Continue reading Christmas cards
On Saturday 28 September the Nystagmus Network bid a very fond farewell to its Chairman of 8 years, Richard Wilson OBE Richard joined the charity as a trustee in 2008 and rose to Chairman in June 2011. At the Annual General Meeting Nystagmus Network Founder and Honorary President, Vivien Jones gave a heartfelt speech in … Continue reading Farewell Richard and thank you
Over 200 people gathered together on Saturday 28 September at the spectacular Principality Stadium, Cardiff for the Nystagmus Network Open Day 2019. To the strains of Sospan Fach, by Cerys Matthews, Chairman of the Nystagmus Network, Richard Wilson OBE took to the stage to welcome everyone. Up next, Nystagmus Network Founder and Honorary President, Vivien … Continue reading Open Day 2019 – the highlights