Rylan’s Mum says: “My son Rylan was only diagnosed with nystagmus in Reception at school, although I had always noticed his eyes swinging from side to side. He is just turned six and is the first free reader in his class! We are so proud as we know scanning the words isn’t easy for him … Continue reading How amazing is Rylan?
This is a message from Marcus at Tate in which I tell you about our forthcoming Audio Description events at Tate Britain, this month and next. Tate Britain, Monday 18th June 2018 at 10.30 am for refreshments and 11.00 am – 12.15 pm tour. Aftermath: Art in the Wake of World War One Join Marcus and … Continue reading Guest post from Marcus at Tate Britain
We are delighted to be able to welcome Marsha De Cordova MP, Shadow Minister for Disabilities, as our keynote speaker at this year’s Open Day in September. As a sneak preview, follow this link to hear Marsha talk about her nystagmus and how she must adapt her ministerial work to accommodate her visual impairment.
I wanted to share my story to show people with nystagmus that it doesn’t have to stop you from fulfilling your dreams. I was born with nystagmus and my parents were told I would need lots of help and wouldn’t manage mainstream school. Well I did manage it, and also managed college, university, and thereafter … Continue reading How amazing is Suzanne?
My son Alfie who is almost 10 has never let anything stand in his way despite now being blind in one eye and having Nystagmus. Alfie persevered in learning how to ride his bike last year and got one for his 9th Birthday. He is going to be sitting the 11+ this September because he is determined … Continue reading How amazing is Alfie?
When I first started school I really struggled to read. It took me months and months to read the first Harry Potter book for myself in large print. I got lots of help at school, though, and especially at university. Now I’ve got a degree in philosophy.
Here’s an amazing story from a very proud mum. When my second son, Ben was born, from about 3 months we noticed there was something wrong with his eye movements. After nearly a year of waiting, research and MRI scans he was diagnosed with Congenital Nystagmus. We weren’t sure how this would affect him and … Continue reading How amazing is Ben?
I was born with nystagmus and always struggled at school both in the classroom and in PE. All throughout my education it’s been a continuous trip to the printer to enlarge text books and print outs. Things didn’t really change at college. I was told I had dyslexia which could be linked to the nystagmus, … Continue reading How amazing is Freya?
Throughout June we’ll be publishing all your amazing nystagmus stories right here on our blog and also on our Facebook page and asking people to donate just £5 to help the Nystagmus Network support more people with nystagmus to be amazing.
There are bound to be loads of bake sales for Nystagmus Awareness Day 2018 on 20 June, so we thought it would be a great idea to have some Nystagmus Network cake flags made, especially for you. Order your free cake flags today. But hurry, they’re going like …