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Category: Ruby Stories

Cohen smiling for the camera, wearing glasses and a white polo shirt with a black striped collar

Cohen’s Story


  “Cohen was diagnosed with congenital nystagmus when he was around 6 months old. He is now almost 10 years old. Cohen’s cousin was diagnosed with nystagmus a year or … Continue reading Cohen’s Story

Posted on April 10, 2024April 17, 2024Author Sue RickettsCategories Ruby StoriesTags awareness, congenital nystagmus, Our Ruby Year, Ruby Stories
Sue weas a pink polo shirt and carries a beach bag, sunglasses and her shoes. She is on a beach.

Sue’s 1984 Story


In 1984 I had never heard of nystagmus and had no connection with the condition at all.  It was for me a very momentous year, though, because it was the … Continue reading Sue’s 1984 Story

Posted on April 10, 2024June 13, 2024Author Sue RickettsCategories Ruby StoriesTags awareness, nystagmus network, Our Ruby Year, Ruby Stories
Two young children in party clothes stand beside a frosted cake.

Onyeka’s 1984 Story


This is a photo of my elder brother (Tony) and me at my first birthday celebration in Nigeria. Report has it that he desperately tried to steal the show but … Continue reading Onyeka’s 1984 Story

Posted on April 10, 2024April 17, 2024Author Sue RickettsCategories Posts, Ruby StoriesTags awareness, nystagmus network, Our Ruby Year, Ruby Stories

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