Contact
You can reach our support and information services as usual during COVID-19.
You can reach our support and information services as usual during COVID-19.
For information or support from the Nystagmus Network you can speak to someone on the phone throughout normal office hours. From Monday to Friday, Sue will answer the phone, whenever she is available. If she happens to be away from her desk, or in the evenings and at weekends, you can leave a message. Sue will call you back.
Call 01427 718093
You can email the Nystagmus Network using this address:
info@nystagmusnet.org
We will email you back within 5 working days.
To write to us, please use our charity registered address:
Nystagmus Network
70 Hyde Vale
London
SE10 8HP
Nystagmus Network staff members post news, stories, information, research opportunities and your successes on our Facebook page every single day of the year. Please follow us to keep up to date with everything nystagmus.
We also have 5 Facebook groups. Why not join one or more of them?
Please remember: if a group isn’t linked to our Facebook page, it isn’t our group.
The Nystagmus Network Facebook Group for parents and carers of children and young people with nystagmus. Share your experiences of diagnosis, early years and education support. Charity staff members Sue and Sara are the group admins, here to offer support, information, advice and guidance and point you in the right direction.
Please remember: if a group isn’t linked to our Facebook page, it isn’t our group.
This Nystagmus Network Facebook Group is for adults living with acquired or congenital nystagmus. Share your experience of employment, sports and leisure, getting around and general day to day living. Charity staff members Sue and Sara are the group admins, here to offer support, information, advice and guidance and point you in the right direction.
Please remember: if a group isn’t linked to our Facebook page, it isn’t our group.
This Nystagmus Network Facebook Group is the place for you to connect with other people living with acquired nystagmus and oscillopsia, find out more about these conditions and help drive research into diagnosis and therapies.
Please remember: if a group isn’t linked to our Facebook page, it isn’t our group.
This Nystagmus Network Facebook Group is for our fundraisers, members and supporters. This is the place where we celebrate your achievements on behalf of the charity and say a huge THANK YOU! Charity staff members Sue and Sara are the group admins, here to support you with your fundraising, let you know about fantastic participation opportunities and to show you our unerring admiration and gratitude.
Please remember: if a group isn’t linked to our Facebook page, it isn’t our group.
This Nystagmus Network Facebook Group is for everyone who wants to help us raise awareness of nystagmus so that everyone can enjoy a better quality of life. Charity staff members Sue and Sara are the group admins, here to let you know about awareness raising opportunities, help you raise awareness yourself and keep you up to date with all nystagmus news.
Please remember: if a group isn’t linked to our Facebook page, it isn’t our group.
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