Information and support line


For information or support from the Nystagmus Network you can speak to someone on the phone throughout normal office hours. From Monday to Friday, Sue will answer the phone, whenever she is available. If she happens to be away from her desk, or in the evenings and at weekends, you can leave a message. Then Sue or Sara will call you back.

The number to call is 01427 718093

Email us


You can email the Nystagmus Network using this address:

info@nystagmusnet.org

We will email you back within 5 working days.

Our postal address


To write to us, please use our charity registered address:

Nystagmus Network

70 Hyde Vale

London

SE10 8HP

Find us on Facebook


Click here to visit our Facebook page, to read all the latest nystagmus news research, education, events. You can also send us a message any time, day or night. We promise we will get back to you as soon as we can.

Join our Facebook Group for Parents. The Nystagmus Network Facebook Group for parents and carers of children and young people with nystagmus. Share your experiences of diagnosis, early years and education support. Charity staff members Sue, Sara and Debbie are the group admins, here to offer support, information, advice and guidance and point you in the right direction.

Join our Facebook Group for Adults. This Nystagmus Network Facebook Group is for adults living with acquired or congenital nystagmus. Share your experience of employment, sports and leisure, getting around and general day to day living. Charity staff members Sue, Sara and Debbie are the group admins, here to offer support, information, advice and guidance and point you in the right direction.

Join our Facebook Group for Friends of the Nystagmus Network. This Nystagmus Network Facebook Group is for our fundraisers, members and supporters. This is the place where we celebrate your achievements on behalf of the charity and say a huge THANK YOU! Charity staff members Sue, Sara and Debbie are the group admins, here to support you with your fundraising, let you know about fantastic participation opportunities and to show you our unerring admiration and gratitude.

Our privacy policy


We won’t keep your contact details after we’ve answered your enquiry unless you ask us to.

You can read our full privacy statement here.