Education advocacy


As the largest UK charity supporting people affected by nystagmus, the Nystagmus Network is well placed to drive change in the field of nystagmus and education support.

Conversations with Nystagmus Network members have led us to identify a need for education advocacy for parents and carers supporting children and young people with nystagmus in nursery, school or college.

Due to the complexity of SEND Law, Frances Lilley and Claire Brinn our volunteer education advocates, provide a personal one to one service to Nystagmus Network members to discuss a child’s individual education support needs in settings in England. They can provide legally-based advice to secure meaningful support across all stages of education.

Our education advocacy service is available free of charge to members of the Nystagmus Network.

Our #GivingTuesday appeal

Please help the Nystagmus Network support more children to access learning at school, by pledging £5 on #GivingTuesday.

Every £5 donated will help us provide education advocacy to parents and carers of children and young people with nystagmus.

Our appeal target is £850 which is the cost of initial training for a new volunteer education advocate.

Thank you

Please donate here – thank you