Early Years

Parents and carers need to be prepared to support their child through all stages of their development. It’s never too early to start finding out what help and resources are available.

Primary School

Starting primary school is a big step for any child. For a child with nystagmus, it’s even more important to be well prepared.


Moving from primary to secondary school can mean all sorts of changes for the child with nystagmus. The team supporting the child can change and there are lots more things to consider inside the classroom and beyond.

Secondary school

As the number of subjects and teachers increases and public examinations appear just over the horizon, it’s time to establish support and the child’s preferred way of working.

Assistive Technology

Assistive technology is a key factor in providing children and young people with equal access to the curriculum. Your QTVI will be able to advise on assistive technology. Assistive technology assessments should be listed in an EHC Plan to include training and yearly reviews at least as the student moves through different stages of education. Try to ensure that equipment does not become a physical barrier between a vision impaired student and his or her peers.



Education Health Care Plans – EHCP

The Council for Disabled Children provide examples of good practise for the compilation of EHC plans, including their most recent exemplar guide 2017 which can be downloaded here.

Guide Dogs publish an EHCP guide, available to download here.

Emotional Wellbeing


Some children and young people may need some additional help in coming to terms with sight loss or may want to talk about their sight loss to people outside of the family. Parents and carers too may need support. Below are some potential resources for children and young people as well as for parents and carers.  The list is not exhaustive and is offered as a suggestion only.

Mobility and Habilitation

Families supporting children with nystagmus are often unsure as to whether mobility training or habilitation is for them. It is! You don’t have to need a white cane to benefit from advice on getting around, crossing the road and finding the best route to school.

Reading Resources

There is a wealth of adapted reading material, talking and tactile books and accessible libraries available to individuals, families and schools. We provide a round up of the best known and most used. Some are free of charge. For others a subscription is payable.

Low Vision

Low vision is the term used for eyesight that can’t be fully corrected with glasses or contact lenses. When wearing glasses or contact lenses, the child still has a vision impairment.

It is important for children with sight conditions other then nystagmus to wear glasses or contact lenses if they have been prescribed.


This education resource hub is based on information gathered from the experience of parents of children with nystagmus and is designed purely to raise awareness of the support available in the English educational system to children and young people with nystagmus as at the date of publication. In it we signpost some of the services, products and technologies currently available. The information contained in this guide is not intended to be comprehensive or exhaustive and no reference shall imply any endorsement of any particular service, or any brand or model of any equipment including low vision equipment.  We shall not be held liable and do not accept any liability, obligation or responsibility for their use or for reliance on this guide.

We have taken reasonable care to ensure the accuracy of the information in this guide as at the date of publication, however each nystagmus case varies and this guide cannot cover every eventuality and the services, products and technologies available for children and young people with nystagmus are constantly changing. Parents should ensure that they have access to the most up-to-date information and take advice from their child’s eye specialists, teachers and QTVI (as appropriate) to ensure that the support sought is the most appropriate for that particular child.

Although our education advocate is IPSEA trained, she is not a legal professional and her guidance should not be relied upon as legal advice and is not legally enforceable. Parents should seek specific legal and specialist advice if required by their particular situation.