The Nystagmus Network relies entirely on fundraising, donations, membership subscriptions and gifts in wills to continue our work. Whether you’re running a marathon, holding a cake sale, or anything in between, we’ll be here every step of the way to support you to raise as much money and awareness of nystagmus as possible.
Do something amazing for nystagmus
We’re looking for people who want to do something extraordinary. We’ve got lots of opportunities lined up and we’re ready to give you masses of support to follow your dream. So whether it’s a mountain trek to Kilimanjaro you fancy, a London to Paris bike ride or something a bit nearer to home, we’ve got the bucket list adventure for you. Interested? Please get in touch here .
Sky dives for the Nystagmus Network
The charity has joined forces with UK Skydiving Adventures to offer you the chance to jump out of a plane for nystagmus in 21 different locations across the UK. For more information, please get in touch here.
Run for the Nystagmus Network
If you’re planning to take part in any run across the country and would like to run for Nystagmus Network, please let us know. The charity occasionally has free places available in a range of marathons and half marathons provided you can guarantee to cover the cost of your place and raise at least £250 from sponsorship. To book your place today, please get in touch here .
Cycle for Nystagmus
You can take part in a thrilling night time cycling challenge in Bristol, Glasgow, Liverpool or London. The Nightrider is billed as #notyourusualnightout. Find out more here.
The Eye to Eye walk for nystagmus
In partnership with Moorfields Eye Charity, the Nystagmus Network is recruiting a team to take part in the Eye to Eye walk from the London Eye to the iconic eye on the front of the Moorfields Eye Hospital building. The walk takes place on Sunday 10 March 2019 and you can choose to walk 4 or 14 miles. Bring the children, bring the dog! Have a great day out and help us raise lots of money for nystagmus research at Moorfields and University College, London. To apply to join team Nystagmus Network for an 11 am start, please click the link.
Calling all golfers
Is it your turn to take on the captaincy of your club this year? Could you nominate the Nystagmus Network as your captain’s charity? That’s just what Mike did. He raised lots of money for the charity, created loads of awareness of the condition and had a fabulous time organising all the events with fellow golfers, friends and family. If you could support us, too, please let us know.
Support from the Nystagmus Network
If you can guarantee that you’ll raise at least £100 through sponsorship, we’ll send you a Nystagmus Network running vest. For event organisers we have T-shirts. Just let us know what size you need. We’ll also send you a supply of wristbands for your sponsors. For smaller events we have flyers, sponsor forms, balloons and collecting tins.
Promoting your event
We suggest that our fundraisers set up a Justgiving page. It’s really easy to do. You just need to add your story and photo to the Nystagmus Network details. Then we can publicise your fundraising event across our social media to make sure you reach lots of supporters. Using Justgiving means that the Nystagmus Network can collect an extra 25% in Gift Aid automatically on all eligible donations to boost your total even more.
Sending in the money raised
If you use Justgiving you don’t need to do anything as the money is paid directly to us. If you have cash or a cheque to pay in, please get in touch here and we’ll send you our bank details. Alternatively you can make a one-off donation using the Justgiving page on our website, or you can post a cheque to:
Nystagmus Network, 15 Robinia Green, Southampton, SO16 8EQ
Get in touch
If you’d like to hold an event for the Nystagmus Network please get in touch here so we can help you with your fundraising. Your hard work will mean that we can continue to support the nystagmus community, provide information, raise awareness and fund research.