Emma stands at her fundraising stall. She is wearing a red t shirt with the slogan I (heart) wobbly eyes and a face mask.

Thank you, Emma


For Halloween 2020 Emma and her very determined family held a coffee, cake and crafts fundraiser for the Nystagmus Network. All COVID-19 restrictions were followed and the family raised £400. An amazing effort! Thank you so much!

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Jaina smiles at the camera.

Thank you, Jaina


Jaina joined the Nystagmus Network team in August 2020 as an intern, spending some time to gain experience of working in a small charity. Jaina was hugely helpful in the run up to virtual Open Day 2020 and you may have ‘met’ her in our forums.

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Josh and his family smile for the camera.

Thank you, Josh


Josh can’t see rain – can you? Josh was born with nystagmus and ocular albinism, but he hasn’t let that hold him back. Josh has been a primary school teacher for 7 years, completed his masters, got grade 8 piano and regularly sings in City of Birmingham Choir at Symphony Hall.

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Libby smiles at the camera.

Thank you, Libby


Inspired by her 2 younger sisters, who both have nystagmus, final year geography student, Libby chose to explore the experiences of young visually impaired adults in their local space and environment  and the impacts on identity formation for her dissertation.

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Mervyn smiles for the camera.

Thank you, Mervyn


Nystagmus can be challenging to diagnose in children and often the level of sight loss a newly diagnosed child will experience is unclear, leading to significant anxiety for parents who fear their child will develop severe visual impairment.

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Nadine smiles for the camera

Thank you, Nadine


Thanks to her book ‘Can I tell you about nystagmus?’, children and their parents feel better able to explain nystagmus to others. In 2020, with the country in lockdown and schools closed, Nadine came up trumps again with advice and tips for parents struggling with homeschooling.

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Head shot of Nikita Thomas

Thank you, Nikita


On World Sight Day 2020, Nikita was named an Eye Health Hero by the IAPB (the International Agency for the Prevention of Blindness). Nominated for her innovative work in perimetry, we’re sure that Nikita has a brilliant nystagmus research career ahead of her.

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