Local nystagmus networks


Virtual parents’ forum

The Nystagmus Network is currently offering virtual parent forums via Zoom. If you would like to join in, meet other parents and carers and make new friends, please contact us.

Regional meet ups

As soon as circumstances allow, the Nystagmus Network is planning a number of face to face regional meet ups – a chance for everyone living with nystagmus, adults, children and young people and their parents, to get together to share experiences and support. Everyone welcome!

If you would like to join a group or volunteer to lead one in your area, please email us today.

Acquired nystagmus group


We now have a thriving virtual group for people living with Acquired Nystagmus. We chat regularly over email about every topic imaginable, from diagnosis and symptom management to lifestyle and driving.

We also get together via Zoom.

Please join us. Email info@nystagmusnet.org today.