Local nystagmus networks


The Nystagmus Network is planning a number of regional meet ups for our newly established local nystagmus networks – a chance for everyone affected by nystagmus, adults, children and young people and their parents, to get together to share experiences and support. Everyone welcome!

If you would like to join a group or volunteer to lead one in your area, please email us today.

Acquired nystagmus group


We now have a thriving virtual group for people living with Acquired Nystagmus. We chat regularly over email about every topic imaginable, from diagnosis and symptom management to lifestyle and driving.

We also occasionally get together on the phone for a ‘conference’ call.

Please join us. Email info@nystagmusnet.org today.