Thanks to our close partnership with the UK nystagmus research and clinical centres of excellence, you can help steer the future of nystagmus research.
Mr Vijay Taylor at Moorfields Eye Hospital has been working with people with congenital idiopathic nystagmus aged between 18 and 50 years to help him investigate the phenomenon of visual crowding in nystagmus. We will hear an update on his findings at Open Day 2019 in Cardiff.
Albinism researchers in Southampton (Jay Self and Helena Lee) would love to hear from anyone with any form of albinism who is over the age of 60. If you or anyone you know fits the bill, please complete the form.
The Nystagmus Network has helped recruit families and individuals to participate in a study about support and information available to people with nystagmus and their families. Run by University Hospital Southampton, the results of the survey are about to be published. We will hear more at Open Day 2019 in Cardiff.
Children up to the age of 10 with or without Down’s Syndrome can join Asma Zahidi’s study into characteristics and impact of nystagmus in children at the University of Cardiff.
Do you have recently diagnosed Acquired Nystagmus. Do you suffer from oscillopsia some or all of the time? Would you like to take part in a trial involving virtual reality glasses to see if they can alleviate the worst of your symptoms? If so, please contact us and we will put you in touch with the Sheffield team.