Virtual support networks


Everyone is welcome to join our monthly virtual support groups. there’s one for parents and for adults living with acquired or congenital nystagmus. Meet like-minded people, share experiences, make new friends and support each other. It’s a great way to connect with each other until we’re confident enough to meet up in person again.

“What a brilliant idea the forum is and I really enjoyed it – a wide range of people with unique stories – obviously a lot of thought went into it and I can’t wait till the next one,” – a new member of our adults’ forum

“The Nystagmus Network forum is really good for stress relief” – a member of our Acquired Nystagmus and Oscillopsia forum

Our monthly Zoom get togethers began during the first lockdown and have continued throughout the pandemic. We plan to start up new regional face to face groups or local nystagmus networks as soon as we can, but we will also continue to host our online support groups to keep you connected.

Virtual parents’ forum

The Nystagmus Network hosts virtual parent forums via Zoom. If you are the parent, carer or other family member of a child or young person with nystagmus and would like to join in, meet others and make new friends, please contact us.

Virtual adults’ forum – congenital nystagmus

The Nystagmus Network hosts virtual adult forums via Zoom. If you are an adult living with congenital nystagmus and would like to join in, connect with other people with nystagmus and make new friends, please contact us.

Acquired nystagmus group

We run a virtual group for people living with Acquired Nystagmus. Members of the group chat regularly over email about every topic imaginable, from diagnosis and symptom management to lifestyle and driving.

They also get together via Zoom.

If you would like to join in, please contact us