Trustee


Are you looking for a new opportunity to use your energy, time, skills and talent? The Nystagmus Network is recruiting trustees to guide and direct the charity’s work.

If you have skills, talent and experience in fundraising, income generation and campaigning the Nystagmus Network would love to hear from you.

The minimum time commitments are one full Saturday four times a year, an evening or daytime phone call every 6 weeks, attendance at beneficiary events and support for Nystagmus Awareness Day. Trustees also have legal responsibilities under charity law.

We are particularly interested in applications from people with lived experience of nystagmus. So, if you have congenital or acquired nystagmus yourself or are the parent/carer or other family member of someone living with nystagmus, we’d love you to join us to help shape our future.

Representing members of the nystagmus community, you will support the charity’s sustainability and ensure our services are there for those  who need them most, helping to make a real difference to quality of life. Please apply to be a trustee, outlining the contribution you could make to our work, by email to [email protected]

Our trustee appointment process includes a written application, then an informal chat with members of the charity team via Zoom or in person, followed by an in person meeting with at least one current trustee. There is then a short induction period. All volunteer appointments are subject to our volunteer role terms and conditions, including a DBS check.