Virtual support networks


Why not join one of our virtual support groups to meet like-minded people, share experiences, make new friends and support each other?

Get together on zoom and connect with each other by email until it’s safe again to meet up in person.

“What a brilliant idea the forum is and I really enjoyed it – a wide range of people with unique stories – obviously a lot of thought went into it and I can’t wait till the next one. “

– a new member of our adults’ forum

Virtual parents’ forum

The Nystagmus Network hosts virtual parent forums via Zoom. If you are the parent or carer of a child or young person with nystagmus and would like to join in, meet others and make new friends, please contact us.

Virtual adults’ forum

The Nystagmus Network hosts virtual adult forums via Zoom. If you are an adult living with nystagmus and would like to join in, meet other people with nystagmus and make new friends, please contact us.

Acquired nystagmus group

We run a virtual group for people living with Acquired Nystagmus. Members of the group chat regularly over email about every topic imaginable, from diagnosis and symptom management to lifestyle and driving.

They also get together via Zoom.

If you would like to join in, please email info@nystagmusnet.org.

Want join or run one of our local nystagmus networks?