Nystagmus Network | Sue Ricketts | Activity

Sue Ricketts wrote a new post

Wed, 22 Apr 2026 16:50:13 +0000

Trustees publish their annual report 2025 Trustees of the Nystagmus Network have lodged their annual accounts and report of charitable activities with the Charity Commission. 2025 was a […]

Sue Ricketts wrote a new post

Wed, 22 Apr 2026 16:40:14 +0000

Employment matters One year on from the publication of Changing Attitudes, Changing Lives, the All Party Parliamentary Group (APPG) on Eye Health and Vision Impairment […]

Sue Ricketts wrote a new post

Tue, 20 Jan 2026 16:13:59 +0000

Participants wanted for nystagmus research This is your opportunity to take part in research by a team at the University of Sheffield to understand how people with nystagmus focus on objects. […]

Sue Ricketts wrote a new post

Wed, 14 Jan 2026 17:06:10 +0000

International Nystagmus Symposium 2026 Early bird registration is now open for the International Nystagmus Symposium online on Friday 6 November 2026. Co-chaired once again this year […]

Sue Ricketts wrote a new post

Tue, 06 Jan 2026 17:02:58 +0000

Our January sale is on! Pick up a bargain in our January Sale with up to 50% off a range of charity merchandise. T shirts, caps, teddies, Christmas cards, books and […]

Sue Ricketts wrote a new post

Thu, 18 Dec 2025 14:23:26 +0000

Nystagmus Network Christmas eCards Did you know you can send a festive eCard in aid of the Nystagmus Network? There are lots of designs to choose from. Send your friends and family a last minute card to show how much you care. Send your eCard here

Sue Ricketts wrote a new post

Thu, 27 Nov 2025 16:15:06 +0000

Richard Wilson Essay Prize winners – 2025 Following the 2025 Richard Wilson Essay Prize competition, we are delighted to announce our winners. First Prize: Yasaman Salari, Academic […]

Sue Ricketts wrote a new post

Tue, 18 Nov 2025 16:22:49 +0000

Giving Tuesday 2025 Whether you’re visiting the Nystagmus Network website for the very first time today or you’ve been with us for a while, you are now part of a huge […]

Sue Ricketts wrote a new post

Mon, 22 Sep 2025 15:05:50 +0000

Christmas card competition Nystagmus Network Children’s Christmas Card Competition 2025 with SALT Projects Ltd 💫 It’s that time again! 👀Are you a child living in the UK […]

Sue Ricketts wrote a new post

Fri, 12 Sep 2025 08:19:37 +0000

What's your challenge for 2026? Take on a challenge at your pace and fundraise for the Nystagmus Network! Choose your distance and your pace. Your challenge your way with Ultra […]

Sue Ricketts wrote a new post

Wed, 27 Aug 2025 11:55:14 +0000

Lee investigates visual acuity in infantile nystagmus Dr Lee Mcilreavy (Cardiff University) is investigating visual acuity in infantile nystagmus “The Nystagmus Network is delighted to be […]

Sue Ricketts wrote a new post

Wed, 27 Aug 2025 11:42:39 +0000

Ellie investigates a potential treatment for Oculocutaneous Albinism Dr Eloise Keeling (University of Southampton): Investigating a potential treatment for Oculocutaneous Albinism type 1 (OCA1) “The Nystagmus […]

Sue Ricketts wrote a new post

Wed, 20 Aug 2025 15:05:31 +0000

What's so great about big nystagmus meet ups? If you’ve never been to a big nystagmus meet up before, you really should try it. The Nystagmus Network has been hosting the meet ups in […]

Sue Ricketts wrote a new post

Thu, 31 Jul 2025 11:02:13 +0000

Sue is Cause4's Charity Leader of the Month! Welcome to August’s Pick of the Month! Cause4 are excited to feature individuals who are making a real impact in the charity world. From […]

Sue Ricketts wrote a new post

Wed, 23 Jul 2025 14:47:57 +0000

Nystagmus Network triumphs in UK Charity Governance Awards 2025 The Nystagmus Network has won a top prize at the UK Charity Governance Awards 2025. The charity was one of five big winners and took home a prize of […]

Sue Ricketts wrote a new post

Fri, 04 Jul 2025 11:04:56 +0000

Vivien receives her honours Following the announcement that Vivien Jones, Founder and Honorary President of the Nystagmus Network, had been awarded an MBE in His Majesty’s New […]

Sue Ricketts wrote a new post

Tue, 24 Jun 2025 16:12:14 +0000

Our Jeans for Genes grant success We are absolutely thrilled to announce we have received a grant from Jeans for Genes. This incredible support will enable us to create and […]

Sue Ricketts wrote a new post

Fri, 23 May 2025 10:04:10 +0000

Take part in neuroscience research People with impaired vision are invited to take part in Neuroscience Research at Goldsmith’s, University of London. Please see details from the […]

Sue Ricketts wrote a new post

Wed, 21 May 2025 17:17:49 +0000

A study of signage for nystagmus and glaucoma A few months ago, a student of Graphic Design from Nottingham Trent University, Elliot Judge contacted the Nystagmus Network for help distributing a […]

Sue Ricketts wrote a new post

Tue, 20 May 2025 15:19:55 +0000

Notice of the AGM 2024 Notice is hereby given that the Annual General Meeting 2024 (the “Meeting”) of THE NYSTAGMUS NETWORK (the “Charitable Incorporated Organ […]

Sue Ricketts wrote a new post

Fri, 16 May 2025 12:43:54 +0000

The influence of Braille literacy – take part in research You are warmly invited to participate in a research study exploring the relationship between braille literacy and the quality of life for people […]

Sue Ricketts wrote a new post

Wed, 14 May 2025 09:40:31 +0000

Nystagmus Network shortlisted for UK Charity Governance Awards 2025 The Nystagmus Network has been shortlisted for the tenth and final Charity Governance Awards. It is in the running for the improving impact in small […]

Sue Ricketts wrote a new post

Wed, 07 May 2025 12:59:46 +0000

Funding opportunity for nystagmus research The Nystagmus Network is delighted to announce that we have entered a research funding partnership this year with Great Ormond Street Hospital […]

Sue Ricketts wrote a new post

Tue, 15 Apr 2025 12:27:01 +0000

Discover the World of Nystagmus with Gemma Arblaster We’re excited to share our recent interview, featuring the insightful Dr Gemma Arblaster, an Orthoptist and lecturer at the University of Sheffield. […]

Sue Ricketts wrote a new post

Wed, 02 Apr 2025 16:00:50 +0000

Take part in research on kitchen equipment Demet Ozturk, a final year Industrial Design student at Loughborough University is exploring design solutions that can make a positive impact on the […]

Sue Ricketts wrote a new post

Wed, 26 Mar 2025 17:33:22 +0000

Sue at the VIEW conference this month Earlier in March the Nystagmus Network’s Sue attended the annual conference of VIEW, the national association of the Vision Impairment Education […]

Sue Ricketts wrote a new post

Wed, 05 Mar 2025 17:56:45 +0000

Nystagmus Network awards legacy grant for groundbreaking nystagmus research Sheffield researchers to study focusing ability in people with nystagmus through innovative new project The Nystagmus Network has awarded a […]

Sue Ricketts wrote a new post

Wed, 12 Feb 2025 16:32:31 +0000

The big nystagmus meet up – Maidstone Please join us for our first in person event of 2025 on Saturday 15 March, 11am to 4pm. An in person event for everyone living with nystagmus or […]

Sue Ricketts wrote a new post

Wed, 12 Feb 2025 16:28:30 +0000

Please join us for 25 for '25 In January 2025 our newest trustee, Hannah celebrated her 25th birthday. Now Hannah wants you to join her party! Let’s celebrate Hannah’s bir […]

Sue Ricketts wrote a new post

Wed, 22 Jan 2025 18:20:00 +0000

Take part in research on getting older with impaired vision Aging in a Disabling Society: Exploring Age, Disability, and Identity Through a Biographical Life-Course Lens. Emma Davis, a student at Durham […]

Sue Ricketts wrote a new post

Mon, 20 Jan 2025 17:26:43 +0000

The London Marathon – April 2026 The Nystagmus Network has been awarded ONE PLACE in the London Marathon 2026. The place will go to the applicant who makes the most compelling case […]

Sue Ricketts wrote a new post

Mon, 20 Jan 2025 16:25:51 +0000

SEND inquiry – please take our survey Dear Parents and Carers The Education Select Committee is seeking evidence on short term actions to stabilise the SEND system which is […]

Sue Ricketts wrote a new post

Tue, 31 Dec 2024 11:15:13 +0000

A New Year honour for Vivien, founder of the Nystagmus Network We are delighted to share the wonderful news that our founder, honorary president and Nystagmus Network trustee, Vivien Jones has received the MBE […]

Sue Ricketts wrote a new post

Tue, 10 Dec 2024 17:17:30 +0000

Justine receives her prize at the House of Lords Justine Chan, who is currently studying medicine at the University of Cambridge, won the Richard Wilson Essay Prize 2024. Part of her prize was […]

Sue Ricketts wrote a new post

Tue, 03 Dec 2024 17:28:09 +0000

Aunt Rhoda's gift to nystagmus research In 2023 the Nystagmus Network received a legacy gift from the late Mrs Rhoda Clarke in the sum of £32,114. 71 The gift was made in the name of […]

Sue Ricketts wrote a new post

Tue, 03 Dec 2024 14:02:35 +0000

Take part in research on signage Elliot Judge is a third-year undergraduate student at Nottingham Trent University, studying Graphic Design. For his dissertation, he is […]

Sue Ricketts wrote a new post

Thu, 28 Nov 2024 11:20:46 +0000

Giving Tuesday opportunities for you On Giving Tuesday 2024, the Nystagmus Network is offering you lots of opportunities to contribute to the work of the charity. On 3 December you […]

Sue Ricketts wrote a new post

Thu, 28 Nov 2024 11:10:33 +0000

Marsha de Cordova MP appointed ambassador to the Nystagmus Network The Nystagmus Network, a UK charity dedicated to supporting individuals and families living with nystagmus for over 40 years, is pleased to announce […]

Sue Ricketts wrote a new post

Mon, 18 Nov 2024 13:12:23 +0000

Cascade Project – updated criteria A research team at Anglia Ruskin University is recruiting parents to take part in their latest research project. Here’s the team to introduce […]

Sue Ricketts wrote a new post

Fri, 15 Nov 2024 12:14:52 +0000

A Ruby Celebration at the House of Lords Forty years ago this month a young mother sat at her kitchen table with a notepad and pen as her infant son slept. She’d just received the d […]

Sue Ricketts wrote a new post

Wed, 13 Nov 2024 17:41:55 +0000

Trustee vacancies Are you looking for a new opportunity to put your energy, time, skills and talent to good use? Do you have the passion to support the nystagmus […]

Sue Ricketts wrote a new post

Tue, 12 Nov 2024 11:27:06 +0000

Giving Tuesday On Giving Tuesday 2024, the Nystagmus Network is offering you lots of opportunities to contribute to the work of the charity. On 3 December you […]

Sue Ricketts wrote a new post

Thu, 07 Nov 2024 10:05:17 +0000

International Nystagmus Symposium 2024 The Nystagmus Network was once again proud to host the International Nystagmus Symposium online on Friday 25 October 2024. The schedule included […]

Sue Ricketts wrote a new post

Tue, 29 Oct 2024 09:48:13 +0000

Nystagmus Network Christmas cards now available to order Designed by children who have nystagmus and their siblings, these lovely cards are created for us by our kind friends at Salt Projects Ltd. 50p […]

Sue Ricketts wrote a new post

Mon, 28 Oct 2024 16:30:55 +0000

Help create a VI and HI friendly website The University of Strathclyde are recruiting participants for a study on assistive technologies for older people with Deafness or Visual […]

Sue Ricketts wrote a new post

Mon, 30 Sep 2024 08:50:27 +0000

Christmas card design competition Children’s Christmas Card Design Competition 2024 with SALT Projects Ltd This competition is open to all children living in the UK with a visual i […]

Sue Ricketts wrote a new post

Thu, 15 Aug 2024 10:15:29 +0000

Another chance to hear our appeal If you missed our BBC Radio 4 charity appeal broadcast on Sunday, there’s another chance to hear actor, singer, musician and children’s author, […]

Sue Ricketts wrote a new post

Wed, 14 Aug 2024 16:15:05 +0000

Justine wins the Richard Wilson Prize 2024 The Nystagmus Network is delighted to announce that Justine Chan, who is currently studying medicine at the University of Cambridge, has won the […]

Sue Ricketts wrote a new post

Mon, 12 Aug 2024 08:15:30 +0000

Did you miss our appeal broadcast? Actor, singer, musician and children’s author, Gerard McDermott, who also happens to have nystagmus, presented a BBC Radio 4 charity appeal on […]

Sue Ricketts wrote a new post

Sun, 11 Aug 2024 00:01:40 +0000

Listen to our BBC Radio 4 charity appeal Actor, singer, musician and children’s author, Gerard McDermott presents a BBC Radio 4 charity appeal on behalf of the Nystagmus Network […]