Nystagmus?

Nystagmus is a complex eye condition characterised by involuntary eye movements. The Nystagmus Network is a UK based charity which supports people affected by the condition and leads the research into finding a treatment.

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Support the Nystagmus Network

With your help we can make a real difference to the 1 in 1,000 people or more who are affected by nystagmus. Watch our video “The way we see it” to understand what it’s like to live with nystagmus.
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Your donation to the Nystagmus Network will help us continue our important work, supporting everyone affected by nystagmus, providing information, raising awareness of the condition and funding much needed research. THANK YOU.

The Nystagmus Network

The Nystagmus Network provides a variety of services to its members. These include providing advice, support and information about nystagmus, how to support your child through the early years, school and beyond into employment, as well as an educational advocacy service by our legally trained volunteer. Members also enjoy priority booking for all Nystagmus Network events, including or annual Open Day.

The Nystagmus Network distributes information about nystagmus

Information

The Nystagmus Network has a range of documents for teachers, parents and adults.

The Nystagmus Network undertakes a variety of awareness raising events

Awareness

The Nystagmus Network holds a variety of different events throughout the year, including national and international Nystagmus Awareness Day, also known as Wobbly Wednesday, and our annual Open Day.

The Nystagmus Network supports research

Research

The Nystagmus Network works closely in partnership with the UK nystagmus research centres of excellence and has been funding research since 1984.

Help us beat nystagmus

The Nystagmus Network is a registered charity in England and Wales (803440) and we are dedicated to supporting everyone affected by nystagmus. We rely on the generosity of our supporters to help us continue to provide the services to help our community. You can make a donation to the charity by clicking on the link below.

Donate to the Nystagmus Network

The Nystagmus Network has three main objectives

Objective one

The Nystagmus Network’s first objective is to provide information and support to the 1 in 1,000 or more people estimated to have poor vision due to nystagmus.

Objective two

Our second objective is to foster and fund research into diagnostics, genetics and treatments, in collaboration with our UK research partners, to improve outcomes for everyone affected by nystagmus.

Objective three

The Nystagmus Network’s third objective is to raise awareness and understanding of nystagmus to ensure that those affected have access to all the support services they need.