Information
Download Nystagmus Network documents below
or read the online Nystagmus Information Pack from the University of Sheffield
What is nystagmus?
Nystagmus is a complex eye condition, characterised by involuntary movements of the eye. The eyes appear to wobble or flicker from side to side, up and down or round and round. This can impact the ability to focus and perceive the world in three dimensions.
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Diagnosis
It may be a parent, other family member, friend, health visitor or GP who first notices nystagmus in a baby. Acquired nystagmus or oscillopsia is usually noticed by the patient themselves or an optician and may be the first sign of a new medical disorder. Both types of nystagmus require thorough investigation.
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Treatment
There are some treatments which can help with nystagmus. There are surgical options and drug therapies, though these are not suitable or effective in every case. Eye drops, prisms in glasses and other aids can also help.
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Information for parents
The Nystagmus Network provides a number of free to download resources which contain practical information and advice for parents and carers who have a child with nystagmus.
Information for adults
The Nystagmus Network provides a number of free to download publications which contain practical advice and information for adults living with acquired or congenital nystagmus.
Information for teachers
The Nystagmus Network provides free to download information and guidance for general and specialist teachers supporting a child with nystagmus.
Nystagmus and benefits
The Nystagmus Network provides a free to download guide to DLA, PIP and nystagmus and navigating the UK benefits system, compiled by our volunteer benefits adviser, Mike. Members of the Nystagmus Network can be referred to Mike for one to one support.
Information on nystagmus and benefits here
Information for ECLOs and clinic staff
The Nystagmus Network provides A5 leaflets, postcards and business cards to help clinic staff signpost patients to the charity for support and information.
Information for ECLOs and clinic staff here
Nystagmus and registration
People with nystagmus are not automatically registered as sight impaired if only the visual acuity is taken into account. Our guide explains how registration works.
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Book a speaker
The Nystagmus Network can deliver in person or virtual talks, lectures, presentations, classroom teaching, seminars, webinars and staff awareness training. We are available for press interview.
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Education resource HUB
Find all the information you need to support a child or young person with nystagmus through education, from early years to university in the searchable Education resource HUB.
Education resource HUB
Introducing the Nystagmus Network
The Nystagmus Network is a UK registered charity providing support and information, raising awareness and funding research.
The Nystagmus Network is registered with Foundation Information.