Information

Download Nystagmus Network documents below

or read the online Nystagmus Information Pack from the University of Sheffield

2 young boys take part in a team building exercise.

What is nystagmus?

Nystagmus is a complex eye condition, characterised by involuntary movements of the eye. The eyes appear to wobble or flicker from side to side, up and down or round and round. Congenital nystagmus simply means nystagmus which is apparent in the first few weeks or months of life. Acquired nystagmus can occur at any time.

A small child is playing with friends. She waers glasses and a blind fold which she has pulled down to reveal one eye. She is smiling cheekily.

Diagnosis

It may be a parent, other family member, friend, health visitor or GP who first notices nystagmus in a baby. Acquired nystagmus or oscillopsia is usually noticed by the patient themselves or an optician and may be the first sign of a new medical disorder. Both types of nystagmus require thorough investigation.

Treatment

There are some treatments which can help with nystagmus. There are surgical options and drug therapies, though these are not suitable or effective in every case. Eye drops, prisms in glasses and other aids can also help.

Information for parents

The Nystagmus Network provides a number of free to download resources which contain practical information and advice for parents and carers who have a child with nystagmus.

Information for parents here

Information for adults

The Nystagmus Network provides a number of free to download publications which contain practical advice and information for adults living with acquired or congenital nystagmus.

Information for adults here

A small child shares a book with an adult.

Information for teachers

The Nystagmus Network provides free to download information and guidance for general and specialist teachers supporting a child with nystagmus.

Information for teachers here

Nystagmus and benefits

The Nystagmus Network provides a free to download guide to DLA, PIP and nystagmus and navigating the UK benefits system, compiled by our volunteer benefits adviser, Mike. Members of the Nystagmus Network can be referred to Mike for one to one support.

Information on nystagmus and benefits here

Information for ECLOs and clinic staff

The Nystagmus Network provides A5 leaflets, postcards and business cards to help clinic staff signpost patients to the charity for support and information.