Information

Find out all you need to know about nystagmus here

2 young boys take part in a team building exercise.

What is nystagmus?

Nystagmus is a complex eye condition, characterised by involuntary eye movements, from side to side, up and down or round and round. This affects the ability to focus, see the world in three dimensions and recognise faces.

A small child is playing with friends. She waers glasses and a blind fold which she has pulled down to reveal one eye. She is smiling cheekily.

Diagnosis

Diagnosing nystagmus can be quite a lengthy process. From the time the eye movements are first noticed to establishing a possible cause there may be a whole raft of medical appointments and tests.

Treatment

There are some treatments which can help with nystagmus. There are surgical options and drug therapies, though these are not suitable or effective in every case. Eye drops, prisms in glasses and other aids can also help.

Information for parents

The Nystagmus Network provides a number of free to download resources which contain practical information and advice for parents and carers who have a child with nystagmus.

Information for parents here

Information for adults

The Nystagmus Network provides a number of free to download publications which contain practical advice and information for adults living with acquired or congenital nystagmus.

Information for adults here

A small child shares a book with an adult.

Information for teachers

The Nystagmus Network provides free to download information and guidance for general and specialist teachers supporting a child with nystagmus.

Information for teachers here

Nystagmus and benefits

Free to download guides to DLA, PIP and nystagmus and navigating the UK benefits system, compiled by our volunteer benefits adviser, Mike

Information on nystagmus and benefits here

People stand at a clinic reception holding Nystagmus Network balloons.

For ECLOs and clinic staff

The Nystagmus Network provides A5 leaflets, postcards and business cards to help clinic staff signpost patients to the charity for support and information.

Information for ECLOs and clinic staff here