What is Nystagmus?

Nystagmus is a complex eye condition, characterised by involuntary eye movements, affecting focus and depth perception.

The Nystagmus Network is a UK registered charity number 1180450 which provides support and information, raises awareness and funds research.
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Support the Nystagmus Network

With your help we can make a real difference to the 1 in 1,000 people or more who have nystagmus. Watch our video “The way we see it” to understand what it’s like to live with nystagmus.

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Your donation to the Nystagmus Network will help us continue our important work, supporting everyone affected by nystagmus, providing information, raising awareness of the condition and funding much needed research. THANK YOU.

The Nystagmus Network

The Nystagmus Network is a UK registered charity and a membership organisation. The charity provides advice, support and information about nystagmus. For parents we offer guidance on how to support a child through the early years, school and beyond into employment and, for our members, an educational advocacy service. For adults we offer information and support, benefits advice, local and virtual support groups for people living with congenital and acquired nystagmus.

Members of the Nystagmus Network also enjoy priority booking for all our events, including our annual Open Day.


The Nystagmus Network provides an information support line, answers enquiries by email and on social media and offers a range of free to download documents for parents and adults, teachers and clinic staff.


The Nystagmus Network holds a national and international Nystagmus Awareness Day on 20 June each year and works tirelessly to raise awareness of the condition every single day of the year.


The Nystagmus Network works closely in partnership with the UK nystagmus research centres of excellence and Fight for Sight and has been funding research since 1984.

Help us beat nystagmus

At least 1 in 1,000 babies are diagnosed with congenital nystagmus in the first few weeks of life in the UK. For most parents, this is the first time they’ve heard of the condition.

Hundreds more children and adults acquire nystagmus later in life.

Your donation to the Nystagmus Network will help fund research to enable better diagnostic testing and work towards developing effective treatments, preventing nystagmus and, one day, finding a cure.


Information and Support

The Nystagmus Network’s first objective is to provide information and support to everyone living with Congenital or Acquired Nystagmus, their families and the people who support them.


The Nystagmus Network’s second objective is to raise awareness and understanding of nystagmus to ensure that people who have the condition have access to all the support services they need.


Our third objective is to foster and fund research into diagnostics, genetics and potential therapies and treatments, in collaboration with our UK research partners, to improve the quality of life and outcomes for everyone living with nystagmus.