What is Nystagmus?

Nystagmus is a complex eye condition, characterised by involuntary eye movements, affecting focus and depth perception.

The Nystagmus Network is a UK registered charity which provides support and information, raises awareness and funds research.

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Support the Nystagmus Network

With your help we can make a real difference to the 1 in 1,000 people or more who have nystagmus. Watch our video “The way we see it” to understand what it’s like to live with nystagmus.
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Your donation to the Nystagmus Network will help us continue our important work, supporting everyone affected by nystagmus, providing information, raising awareness of the condition and funding much needed research. THANK YOU.

The Nystagmus Network

The Nystagmus Network is a membership organisation. The charity provides advice, support and information about nystagmus, how to support a child through the early years, school and beyond into employment, an educational advocacy service, benefits advice, local and virtual support groups for people living with congenital and acquired nystagmus.

Members also enjoy priority booking for all Nystagmus Network events, including our annual Open Day.

Information

The Nystagmus Network provides an information support line, answers enquiries by email and on social media and has a range of documents for teachers, parents and adults.

Awareness

The Nystagmus Network holds a national and international Nystagmus Awareness Day on 20 June each year and works tirelessly to raise awareness of the condition every single day of the year.

Research

The Nystagmus Network works closely in partnership with the UK nystagmus research centres of excellence and Fight for Sight and has been funding research since 1984.

Help us beat nystagmus

At least 1 in 1,000 babies are diagnosed with congenital nystagmus in the first few weeks of life in the UK. For most parents, this is the first time they’ve heard of the condition.

Hundreds more children and adults acquire nystagmus later in life.

Your donation to the Nystagmus Network will help fund research to enable better diagnostic testing and work towards developing effective treatments, preventing nystagmus and, one day, finding a cure.

THANK YOU

Information and Support

The Nystagmus Network’s first objective is to provide information and support to everyone living with Congenital or Acquired Nystagmus, their families and the people who support them.

Awareness

The Nystagmus Network’s second objective is to raise awareness and understanding of nystagmus to ensure that people who have the condition have access to all the support services they need.

Research

Our third objective is to foster and fund research into diagnostics, genetics and potential therapies and treatments, in collaboration with our UK research partners, to improve the quality of life and outcomes for everyone living with nystagmus.