What is nystagmus?

Nystagmus is a form of visual impairment characterised by uncontrollable eye movements.

The Nystagmus Network is a UK registered charity number 1180450 which provides support and information, raises awareness and funds research.

Call 01427 718093 Watch a video here Donate here

Support the Nystagmus Network

With your help we can make a real difference to the 1 in 1,000 people or more who have nystagmus. Watch our video “The way we see it” to understand what it’s like to live with nystagmus.
DONATE NOW WATCH THE WAY WE SEE IT

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Your donation to the Nystagmus Network will help us continue our important work, supporting everyone affected by nystagmus, providing information, raising awareness of the condition and funding much needed research. THANK YOU.

Nystagmus and the Nystagmus Network

Nystagmus is a form of visual impairment, characterised by wobbling or flickering of the eyes, from side to side, up and down or round and round. This affects the ability to focus, judge speed and depth and recognise faces.

The Nystagmus Network is a registered charity in England and Wales. The charity provides advice, support and information to everyone living with nystagmus and their families, an educational advocacy service and benefits advice, training for teaching staff and eye care professionals. There are local and virtual support groups for people living with congenital and acquired nystagmus, an annual open day each autumn and a national and international Nystagmus Awareness Day on 20 June.

Support

The Nystagmus Network provides an information support line, answers enquiries by email and on social media and offers a range of free to download documents for parents and adults, teachers and clinic staff.

2 boys taking part in a team building exercise.

Awareness

The Nystagmus Network holds a national and international Nystagmus Awareness Day on 20 June each year and works tirelessly to raise awareness of the condition every single day of the year.

Research

The Nystagmus Network works closely in partnership with the UK nystagmus research centres of excellence and Fight for Sight, hosts an annual UK research workshop and has been funding research since 1984.

Help us beat nystagmus

At least 1 in 1,000 babies are diagnosed with congenital nystagmus in the first few weeks of life in the UK. For most parents, this is the first time they’ve heard of the condition.

Hundreds more children and adults acquire nystagmus later in life.

Your donation to the Nystagmus Network will help fund research to enable better diagnostic testing and work towards developing effective treatments, preventing nystagmus and, one day, finding a cure.

THANK YOU

Information and Support

The Nystagmus Network’s first objective is to provide information and support to everyone living with Congenital or Acquired Nystagmus, their families and the people who support them.

Awareness

The Nystagmus Network’s second objective is to raise awareness and understanding of nystagmus to ensure that people who have the condition have access to all the support services they need.

Research

Our third objective is to foster and fund research into diagnostics, genetics and potential therapies and treatments, in collaboration with our UK research partners, to improve the quality of life and outcomes for everyone living with nystagmus.