Nystagmus support and information
Call 01427 718093 Email [email protected]
Nystagmus is a complex eye condition, characterised by wobbling or flickering of the eyes.
Our vision is for a world in which nystagmus is consistently and fully understood and supported in all environments.
We run an information and support line, answer enquiries by email and on social media and offer an extensive range of downloadable documents.
We celebrate national and international Nystagmus Awareness Day on 20 June each year and work tirelessly to raise awareness of the condition every single day.
We work closely with the UK nystagmus research centres and have been funding research since 1984. This year we are proud to host Symposium 2023.
The Nystagmus Network provides information and support to everyone living with Congenital or Acquired Nystagmus, their families and the people who support them.
The Nystagmus Network raises awareness and understanding to ensure that people who have nystagmus have access to the support services they need.
The Nystagmus Network funds research in collaboration with our UK research partners, to improve the quality of life and outcomes for everyone living with nystagmus.