Nystagmus Network – Supporting people living with nystagmus

Nystagmus support and information

We provide support, raise awareness and fund research. Congenital Nystagmus here (from birth) Acquired Nystagmus here (late onset)

Call 01427 718093 Email [email protected]

You can join our one thousand mile challenge here

Nystagmus and the Nystagmus Network

Nystagmus is a complex eye condition, characterised by wobbling or flickering of the eyes.

Our vision is for a world in which nystagmus is consistently and fully understood and supported in all environments.

Support

We run an information and support line, answer enquiries by email and on social media and offer an extensive range of downloadable documents.

2 boys taking part in a team building exercise.

Awareness

We celebrate national and international Nystagmus Awareness Day on 20 June each year and work tirelessly to raise awareness of the condition every single day.

Research

We work closely with the UK nystagmus research centres and have been funding research since 1984. This year we are proud to host Symposium 2023.

Donate to the Nystagmus Network here

Your donation will fund research and support for children and adults living with nystagmus

THANK YOU

Information and Support

The Nystagmus Network provides information and support to everyone living with Congenital or Acquired Nystagmus, their families and the people who support them.

Awareness

The Nystagmus Network raises awareness and understanding to ensure that people who have nystagmus have access to the support services they need.

Research

The Nystagmus Network funds research in collaboration with our UK research partners, to improve the quality of life and outcomes for everyone living with nystagmus.