We’re here to support you every step of the way

Whether you have Congenital Nystagmus (from birth) or Acquired Nystagmus (late onset) the Nystagmus Network is here for you. We provide support and information, raise awareness and fund research.        

Call 01427 718093  Email info@nystagmusnet.org 


Support the Nystagmus Network

With your help we can make a real difference to the 1 in 1,000 people or more who have nystagmus. Watch our video “The way we see it” to understand what it’s like to live with nystagmus.

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Your donation to the Nystagmus Network will help us continue our important work, supporting everyone affected by nystagmus, providing information, raising awareness of the condition and funding much needed research. THANK YOU.

Nystagmus and the Nystagmus Network

Nystagmus is a form of visual impairment, characterised by wobbling or flickering of the eyes.

The Nystagmus Network is a registered charity in England and Wales. We provide support and information, raise awareness and fund research.

A family smiles at the camera.


We run an information and support line, answer enquiries by email and on social media and offer an extensive range of downloadable documents.

2 boys taking part in a team building exercise.


We celebrate national and international Nystagmus Awareness Day on 20 June each year and work tirelessly to raise awareness of the condition every single day.

A researcher chatting with delegates.


We work closely with the UK nystagmus research centres and have been funding research since 1984. This year we are proud to host Symposium2022.

Information and Support

The Nystagmus Network provides information and support to everyone living with Congenital or Acquired Nystagmus, their families and the people who support them.


The Nystagmus Network raises awareness and understanding to ensure that people who have nystagmus have access to the support services they need.


The Nystagmus Network funds research in collaboration with our UK research partners, to improve the quality of life and outcomes for everyone living with nystagmus.