We provide support and information, raise awareness and fund research.

Call 01427 718093 

Email [email protected]

Nystagmus and the Nystagmus Network

Nystagmus is a complex eye condition, characterised by wobbling or flickering of the eyes.

Our vision is for a world in which nystagmus is consistently and fully understood and supported in all environments.

A family smiles at the camera.

Support

We run an information and support line, host regular online and in person events, answer enquiries by email and on social media and provide information guides.

 

2 boys taking part in a team building exercise.

Awareness

We celebrate Nystagmus Awareness Day on 20 June, deliver training for schools, employers and clinics and post about nystagmus on social media every day.

 

A researcher chatting with delegates.

Research

We host workshops and an annual international Symposium, represent the patient voice as part of NUKE, fund research projects and recruit study participants.

 

Mike and his nephew, both wearing WWE T-shirts, fist bump for the camera.

Nystagmus ‘super hero’ Mike has completed no fewer than 4 personal challenges for the Nystagmus Network, including walking the entire length of New Zealand, cycling around Tasmania, and, in 2024, the Croatian Long Distance Trail. He’s raising money for nystagmus research. Both Mike and his young nephew, Archie have nystagmus.

Events

The Nystagmus Network hosts regular in person and online events, workshops, training, competitions and more. Everyone welcome! Please see What’s on.

Membership

The Nystagmus Network is a membership organisation. This means we can truly represent your voice. Please join us as a member today.