Local nystagmus get togethers
The Nystagmus Network runs local get togethers, thanks to the support of our wonderful volunteers. To join one of them or even host your own, please contact us today. Everyone welcome!
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Monthly online get togethers
We run monthly online get togethers for parents and for adults living with acquired or congenital nystagmus. It’s a great way to connect with other members of the nystagmus community.
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Information and support line
You can speak to Sue on the phone in normal office hours. If she’s away from her desk, or in the evenings and at weekends, you can leave a message. She’ll call you back.
Call 01427 718093
The Nystagmus Network team
The charity is run by a group of trustees, a small staff team and a growing band of volunteers. Most of us have lived experience of nystagmus, or support a family member who does.
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Education Support Service
Securing appropriate special education support for a child with nystagmus is not always straight forward. The Nystagmus Network support team is here to help.
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Benefits advice
A diagnosis of nystagmus does not automatically mean you are entitled to benefits. We can help you with information and support with applications.
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