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Nystagmus Network

Supporting people living with nystagmus

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    • Congenital Nystagmus
    • Acquired Nystagmus
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Congenital Nystagmus


Congenital or Infantile Nystagmus is noticed in the first few weeks or months of life and is a lifelong condition

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Information


Easy to understand information on all aspects of congenital nystagmus.

Click here for information for parents

Click here for information for adults

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Diagnosis


Our clinical adviser, Jay Self talks you through diagnosis of Congenital Nystagmus.

Watch the video here

Helena Lee presents at a Nystagmus Network Open Day

Treatment


Our clinical adviser, Helena Lee, explains the optical, medical and surgical options.

Watch the video here

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One man’s story


I want to encourage people living with nystagmus and give hope that they can achieve beyond their expectations and those of others.

Continue reading “One man’s story”

A family at Open Day.

Facebook Groups


Find the nystagmus community online by joining a Nystagmus Network Facebook group.

Continue reading “Facebook Groups”
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Research


The Nystagmus Network has been funding research since the 1990s.

Continue reading “Research”
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A guide to nystagmus


If you really want to know what it’s like to have nystagmus, read our guide written by people who have the condition.

Download your copy here

Marsha chats with delegates at a Nystagmus Network event.

Come along to a get together


The Nystagmus Network hosts monthly online get togethers giving you the opportunity to share your experiences and learn more about nystagmus.

Continue reading “Come along to a get together”

Contact us

info@nystagmusnet.org

01427 718093

6 Lancaster Gardens Kingston upon Thames
KT2 5NL

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