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Congenital Nystagmus


Congenital or Infantile Nystagmus is noticed in the first few weeks or months of life and is a lifelong condition

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Information


Easy to understand information on all aspects of congenital nystagmus.

Click here for information for parents

Click here for information for adults

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Diagnosis


Our clinical adviser, Jay Self talks you through diagnosis of Congenital Nystagmus.

Watch the video here

Helena Lee presents at a Nystagmus Network Open Day

Treatment


Our clinical adviser, Helena Lee, explains the optical, medical and surgical options.

Watch the video here

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One man’s story


Living with Congenital Nystagmus through a global pandemic. One man’s experience.

Continue reading “One man’s story”
A family at Open Day.

Facebook Groups


Find the nystagmus community online by joining a Nystagmus Network Facebook group.

Continue reading “Facebook Groups”
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Research


The Nystagmus Network has been funding research since the 1990s.

Continue reading “Research”
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A guide to nystagmus


If you really want to know what it’s like to have nystagmus, read our guide written by people who have the condition.

Download your copy here

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Come along to a get together


The Nystagmus Network hosts monthly online get togethers giving you the opportunity to share your experiences and learn more about nystagmus.

Continue reading “Come along to a get together”

Contact us

info@nystagmusnet.org

01427 718093

6 Lancaster Gardens Kingston upon Thames
KT2 5NL

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