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Congenital Nystagmus


Congenital or Infantile Nystagmus is noticed in the first few weeks or months of life and is a lifelong condition

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Information


Easy to understand information on all aspects of congenital nystagmus.

Click here for information for parents

Click here for information for adults

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Diagnosis


Our clinical adviser, Jay Self talks you through diagnosis of Congenital Nystagmus.

Watch the video here

Helena Lee presents at a Nystagmus Network Open Day

Treatment


Our clinical adviser, Helena Lee, explains the optical, medical and surgical options.

Watch the video here

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One man’s story


Living with Congenital Nystagmus through a global pandemic. One man’s experience.

Continue reading “One man’s story”
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Facebook Groups


Find a whole nystagmus community online by joining one of the Nystagmus Network Facebook groups.

Continue reading “Facebook Groups”
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Research


The Nystagmus Network has been funding research since the 1990s.

Continue reading “Research”
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A guide to nystagmus


If you really want to know what it’s like to have nystagmus, read our guide written by people who have the condition.

Download your copy here

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Join our Forum


The Nystagmus Network hosts monthly online get togethers giving you the opportunity to share your experiences and learn more about nystagmus.

Continue reading “Join our Forum”

Contact us

E: info@nystagmusnet.org

T: 01427 718093

P: 6 Lancaster Gardens Kingston upon Thames KT2 5NL

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