Share your #ImNotMakingThisUp story for Nystagmus Awareness Day.
For Nystagmus Awareness Day 2026 we’re asking you to tell us when someone thought you might be making something up about your nystagmus.
Did anyone tell you to get some new glasses, try a bit harder or ask whether you were getting any better?
We’re not here to be challenged about nystagmus. We just want to explain a condition that is pretty difficult to understand if you don’t have it. Your stories will help us to do that.
You can share your story in words, pictures, audio, video, or absolutely any medium you choose.
As 20 June draws nearer we’ll start sharing all your stories both here and on our Facebook page.
So get creating your story today!
Share your story with us at info@nystagmusnet.org