Please see below a list of all our upcoming events in 2023
Big Nystagmus Meet Up, Manchester 23 September 10am – 3pm
An in person event for people who want to learn more about nystagmus and the support available and meet others living with the condition.
Guest speakers … information and advice … prize draw … celebrating nystagmus heroes … local services … ask the eye doctors … meet Nystagmus Network staff and trustees … nystagmus and school … chat with parents or people living with nystagmus, just like you …
- Chat with clinical staff based at the Royal Eye Hospital, Manchester
- Hear advice from our volunteer benefits adviser about applications, appeals and tribunals
- Find out what really good school support looks like
- Meet the team behind the Amblios Club app and try it for yourself
- Make friends with people living with nystagmus
Local get togethers
Monthly online get togethers
International Nystagmus Symposium 2023
Introducing your speakers.
Marsha de Cordova MP, Disability Rights Campaigner, nystagmus patient and Nystagmus Network ambassador
Professor Doctor Maarten Kamermans Netherlands Institute for Neuroscience
A retinal origin for Congenital Nystagmus in various CSNB mouse models
Sue Ricketts Nystagmus Network
The Nystagmus Care Pathway
Dr Eloise Keeling University of Southampton
Use of a handheld electrophysiology device (RETeval, LKC) to identify visual pathway decussation defects
Professor Chris Harris Royal Eye Infirmary Plymouth and Mr Jay Self University of Southampton
Early Onset Nystagmus is not always INS: The story of NYS4
Nancy Aychoua Moorfields Eye Hospital NHS Foundation Trust
Idiopathic infantile nystagmus – management and molecular diagnostics
Dr Panos Sergouniotis University of Manchester, Manchester Centre for Genomic Medicine and Manchester Royal Eye Hospital
Genetic testing and nystagmus: when and why?
Sarah Macdonald University of Southampton
Novel Therapeutics for Albinism
Dr Helena Lee University of Southampton
Oral Levodopa treatment in improving visual development in infants and young children with albinism
Dr Ifigeneia Manitsa Institute for Mental Health University of Birmingham
Developing an educational game for the school inclusion of students with vision impairment
Registration is now open for the International Nystagmus Symposium 2023 online on Friday 22 September.
Researchers, clinicians, academics and students working in the field of nystagmus research are warmly invited to join us for the Nystagmus Network International Nystagmus Symposium 2023.
Delegates will have the opportunity to:
- Hear the latest thinking on nystagmus diagnosis and treatment
- Learn about new avenues for research
- Explore every aspect of this complex condition
- Collaborate with their peers from around the globe
Presentations from leading thinkers, respected practitioners and innovators from around the world.
Please note this event is not open to the general public. Thank you.