Please see below a list of all our upcoming events in 2023

Big Nystagmus Meet Up, Manchester 23 September 10am – 3pm

A postcard promoting the big nystagmus meet up in Manchester on Saturday 23 September from 10am to 3pm.

An in person event for people who want to learn more about nystagmus and the support available and meet others living with the condition.

Guest speakers … information and advice … prize draw … celebrating nystagmus heroes … local services … ask the eye doctors … meet Nystagmus Network staff and trustees … nystagmus and school … chat with parents or people living with nystagmus, just like you …

  • Chat with clinical staff based at the Royal Eye Hospital, Manchester
  • Hear advice from our volunteer benefits adviser about applications, appeals and tribunals
  • Find out what really good school support looks like
  • Meet the team behind the Amblios Club app and try it for yourself
  • Make friends with people living with nystagmus

Book your place for Manchester here

Local get togethers

Find details of our local get togethers here

Monthly online get togethers

Find details of our online get togethers here

International Nystagmus Symposium 2023

The front page of the International nystagmus symposium 2023 programme.

Introducing your speakers.

Marsha de Cordova MP, Disability Rights Campaigner, nystagmus patient and Nystagmus Network ambassador

Professor Doctor Maarten Kamermans Netherlands Institute for Neuroscience

A retinal origin for Congenital Nystagmus in various CSNB mouse models

Sue Ricketts Nystagmus Network

The Nystagmus Care Pathway

Dr Eloise Keeling University of Southampton

Use of a handheld electrophysiology device (RETeval, LKC) to identify visual pathway decussation defects

Professor Chris Harris Royal Eye Infirmary Plymouth and Mr Jay Self University of Southampton

Early Onset Nystagmus is not always INS: The story of NYS4

Nancy Aychoua Moorfields Eye Hospital NHS Foundation Trust

Idiopathic infantile nystagmus – management and molecular diagnostics

Dr Panos Sergouniotis University of Manchester, Manchester Centre for Genomic Medicine and Manchester Royal Eye Hospital

Genetic testing and nystagmus: when and why?

Sarah Macdonald University of Southampton

Novel Therapeutics for Albinism

Dr Helena Lee University of Southampton

Oral Levodopa treatment in improving visual development in infants and young children with albinism

Dr Ifigeneia Manitsa Institute for Mental Health University of Birmingham

Developing an educational game for the school inclusion of students with vision impairment

Registration is now open for the International Nystagmus Symposium 2023 online on Friday 22 September.

Researchers, clinicians, academics and students working in the field of nystagmus research are warmly invited to join us for the Nystagmus Network International Nystagmus Symposium 2023.

Delegates will have the opportunity to:

  • Hear the latest thinking on nystagmus diagnosis and treatment
  • Learn about new avenues for research
  • Explore every aspect of this complex condition
  • Collaborate with their peers from around the globe

Presentations from leading thinkers, respected practitioners and innovators from around the world.

Details of the Symposium here

Registration here

Please note this event is not open to the general public. Thank you.