Join the biggest nystagmus community and make your voice heard.

“When I joined the Nystagmus Network I discovered literally a world of people just like me. Until that moment I thought I was the only one.”

Isn’t it great, feeling you belong, that you’re part of a wider community, all working towards the same goals?

That’s why the Nystagmus Network is a membership organisation.

The more people we represent, the stronger the charity’s influence and the louder our voice.

Together we can make real difference.

Membership benefits include:

  • Personal invitations and priority booking for all events
  • One to one education support
  • Referral to specialist advice and guidance on benefits
  • Exclusive opportunities to take part in nystagmus research trials
  • A proportion of your subscription will go directly into research
  • Affordable membership for anyone living with nystagmus

Members also enjoy exclusive editions of our digital newsletter, Focus and can join our members only Facebook group.


Membership of the Nystagmus Network is by regular giving (Direct Debit). You can cancel your DD at any time if you no longer wish to remain as a member.

Become a member by DD here

Want to try membership for just one year? You can!

Enjoy the full benefits of being a member of the Nystagmus Network for a whole year from the day you join for £25.

Purchase a one year membership here