What’s on


To mark our 40th anniversary the Nystagmus Network will be holding events, activities, workshops, competitions and celebrations throughout our Ruby Year.Parents, adults living with congenital nystagmus and adults living with acquired nystagmus are warmly invited to join our monthly online get togethers over Zoom. Share your experiences, hints and tips and nystagmus stories, make new friends and find support in our online community. Each month there will be an ice-breaker and a specially chosen topic. To join, please email us at [email protected]

January 2024

Launch of the Richard Wilson Essay Prize

The Great Winter ‘nystagmus’ Get Together including a fun quiz, Thursday 11 January

February 2024

Celebrating Women and Girls in Science – a prize quiz. Join the quiz here.

The Great Ruby Pancake Off Make your pancake, decorate it with a ruby theme, take a photo and email it to us at [email protected]  Congratulations to Julian for winning the pancake competition!

Manchester local coffee and chat, Sunday 11 February. Please email us at [email protected] for details.

Two truths and a lie and nystagmus and employment – the theme for our February get togethers

Online get together for people living with Acquired Nystagmus, Wednesday 28th at 5pm Please email us at [email protected] for an invitation.

Online get together for people living with Congenital Nystagmus, Thursday 29th at 7pm Please email us at [email protected] for an invitation.

March 2024

Our Landmark Trust Away Weekend

Celebrating the Day of Happiness, the theme for our March get togethers is ‘What makes me happy‘.

Online get together for people living with Acquired Nystagmus, Wednesday 20th at 5pm Please email us at [email protected] for an invitation.

Online get together for people living with Congenital Nystagmus, Thursday 28th at 7pm Please email us at [email protected] for an invitation.

April 2024

The big nystagmus meet up – Oxford Saturday 20 April 10am to 4pm.

May 18 and 19 2024

Walk with us as we mark Mental Health Awareness Week and encourage everyone to get out for a walk. Find out how you can join is here.

June 20 2024

Nystagmus Awareness Day 2024 – 20 June

A children’s colouring competition, presentations, fundraising and lots of new stories. There’s even bunting! Please see Awareness for details.

The Great ‘nystagmus’ Summer Get Together – online at 7pm on 20 June Please email us at [email protected] for a Zoom invitation.

July 2024

The big nystagmus meet up – London Saturday 13 July, 11am to 4pm

A postcard for the big nystagmus meet up in London on 13 July, featuring an image of Maria Theodorou, a clinician at Moorfields.

Book your place on Eventbrite now

August 2024

Our BBC Radio 4 charity appeal will be broadcast on Sunday 11 August.

September 2024

The big nystagmus meet up – Sheffield takes place on Saturday 14 September. Please email us at [email protected] for details.

October 2024

The Royal Parks Half Marathon. Follow team Nystagmus Network as they run for us.

The International Nystagmus Symposium 2024 will take place on Friday 25 October. Registration and abstract submission are now open. Please note this is not a patient event.

Abstract submission, please, to [email protected]

Registration through Eventbrite here

November 2024

Nystagmus Network VIP Ruby Celebration – London This event is by invitation only.