Partnership with Fight for Sight

The Nystagmus Network enjoys a long standing funding partnership with leading UK eye research charity, Fight for Sight. This arrangement means that funding goes further and all applications are rigorously vetted.

The Nystagmus Network first joined forces with Fight for Sight under a Joint Small Grant Awards Scheme in 2015. The value of the grant is £15,000 per year. Since then the 2 charities have together funded a wide range of nystagmus research projects, working together to identify new work which has maximum impact on our community.

Read on for details of our latest collaboration …

In 2021/22, in partnership with Fight for Sight, The Nystagmus Network is again offering a small grant award of up to £15,000 for sight research relating to nystagmus.

The Fight for Sight / Nystagmus Network Small Grant Award One award to support clinical research to address visual impairment associated with nystagmus, focusing on quality of life or causes (including genetic), diagnostic testing / analysis or treatments. Applications are now open and will close on 5 August.

Apply here

In 2020/21, in partnership with Fight for Sight, the Nystagmus Network is funding a new nystagmus PhD studentship and, in addition, a further small grant award for a clinical research study focusing on quality of life.

Funding future research

It is very positive news for the future of research for the Nystagmus Network to be funding PhDs, as it establishes a pipeline of work leading to breakthroughs into treatments for nystagmus.

Time scales

Following a rigorous application process, overseen by experts at Fight for Sight, we awarded our PhD nystagmus studentship in March 2021. The additional small grant was awarded in September 2020.

Nystagmus Network Honorary President and chair of the charity’s research subcommittee, Vivien Jones, said:

“Through the new nystagmus PhD studentship we shall be bringing new brain power at a significant level to the nystagmus research table. We are also delighted to be continuing the small grant scheme which is an effective way of supporting research projects.”

You can help us keep investing in nystagmus research by donating to our research fund.


News from 2019 …

Research funding will use iPads to identify the best method to manage Nystagmus

Fight for Sight and The Nystagmus Network announced funding for 3 exciting nystagmus research projects at the Nystagmus Network Conference, which took place in September 2018, during National Eye Health Week.

In total £30,000 in funding has been invested in projects bringing benefits to children and adults living with Nystagmus.

James Self at University of Southampton is developing a new clinical test using an iPad app to measure a patient’s ability to identify faces in a crowd, one of the challenges of nystagmus. The aim is for the app accurately and effectively to diagnose patients and ensure they are offered the most appropriate support for their nystagmus.

Dr Matt Dunn from Cardiff University is being funded to research an improved diagnostic technique for nystagmus in children. Until now the challenge for patients has been keeping their eyes still while the test is performed. Dr Dunn will investigate a new technique that can be used while the eye is also moving, which could improve the earlier diagnosis of this condition in future.

Dr Mervyn Thomas from University of Leicester has been funded to investigate how nystagmus affects the clarity of vision of children living with the condition. The results from this study could directly impact the care and management of very young children with nystagmus.

Dr Neil Ebenezer, Director of Research, Policy and Innovation at Fight for Sight, said: “We are delighted to continue our long-lasting partnership with Nystagmus Network. Nystagmus is a condition which affects an estimated 1 in every 500 children in the UK, so we hope that funding these three research projects will directly benefit patients living with nystagmus.”

Vivien Jones, President and Founder of the Nystagmus Network and Chair of the Nystagmus Network Research Sub-committee, said: “We are absolutely delighted to have made these awards to research centres in the UK.  We hope the 3 research projects we are funding together with Fight for Sight will make progress in terms of improving diagnosis and prognosis, predicting future vision in infants and young children with nystagmus and developing a vision test that can be used in clinical trials of various therapies. All these projects fit our test of improving quality of life and we are very pleased to be able to support them.”

Research funded in 2017

Diagnosing infantile nystagmus: A novel eye tracking approach

Earlier research projects the Nystagmus Network has funded

How do vision and eye movements develop in young children with nystagmus?

Why does the world look like it’s moving when it’s not, in people with some types of nystagmus?

What’s the effect of childhood-onset nystagmus on the ability to balance?