The Nystagmus Network works closely with the UK nystagmus research and clinical centres to bring you opportunities to take part in research.
How much do you know about nystagmus?
Everyone can take part in this 5 minute survey. Then share the link with your friends, family, colleagues, whoever you can think of, especially with people who may never have heard of nystagmus before.
The more people who take the survey, especially people who don’t know about nystagmus already, the better information we will gather.
The survey is about people’s perceptions of nystagmus. The results will help shape further nystagmus research and awareness raising strategies, contributing to better understanding of the condition and improved quality of life as a result.
“The Research Unit for Nystagmus at Cardiff University is looking for people with nystagmus to take part in a survey that aims to further our understanding on the number of people with nystagmus who have also been diagnosed with glaucoma.”
This survey is now closed. Thank you to everyone who contributed to the study. We will report on progress as soon as we can.
Albinism researchers in Southampton (Jay Self and Helena Lee) would love to hear from anyone with any form of albinism who is over the age of 60. If you or anyone you know fits the bill, please complete the form.
Do you have recently diagnosed Acquired Nystagmus. Do you suffer from oscillopsia some or all of the time? Would you like to take part in a trial involving virtual reality glasses to see if they can alleviate the worst of your symptoms? If so, please contact us and we will put you in touch with the Sheffield team.
People with nystagmus are being invited to contribute to medical research by sharing their experiences of accessing a patient information pack, designed to support people living with the little known and complex eye condition.
The team at the University of Sheffield behind the Nystagmus Information Pack would like your help to review the pack and improve care and information services for nystagmus patients.
You can take part completing an online questionnaire from the safety of your own home.