Take part in nystagmus research

The Nystagmus Network works closely with the UK nystagmus research and clinical centres to bring you opportunities to take part in research.

Imperial College London

A team at Imperial are recruiting people with infantile nystagmus due to vestibular conditions to help them better understand oscillopsia. Taking part will involve one in person session at Charing Cross Hospital, London.

Information and contacts here

University of Southampton

Mr Jay Self is inviting you to take part in a research project to help cut hospital appointment waiting times for nystagmus patients. Jay and his team have studied the use of a hand-held device (RETeval®) which can help diagnose many eye conditions and, importantly, can be used in any eye department, anywhere in the country meaning shorter waiting times.

Details and contacts here

University of Plymouth

Dr Mahesh Joshi and Dr Asma Zahidi invite anyone who has Infantile (Congenital) Nystagmus aged between 18 and 35 to take part in ‘Perceptual Learning for Nystagmus, a new study jointly funded by the Nystagmus Network and Fight for Sight and run in collaboration with Cardiff University.

Details and contacts here

Anglia Ruskin University

Parents and their primary school aged children are invited to take part in research at home using an App to explore social interaction, creativity, communication and spatial awareness.

Details and contacts here

Also at Anglia Ruskin

Student Natalie Assaf invites you to join her for 60 minutes in Cambridge to take part in her research on the impact of impaired vision on the brain.

Details and contacts here

University of Birmingham

Take part in research to help make university life better for students with impaired vision. You can take part in this study if you are a current or recent university student with a vision impairment.

Details and contacts here

University of Sheffield

Are you aged between 16 and 25?
Have you accessed UK-based eye clinic and low vision services as a child or young adult?
If so, a team at the University of Sheffield would like to invite you to take part in a research project.
They want to understand the impact of paediatric low vision clinical services from the patient’s point of
view. You can talk about your experiences in a Google Meet interview.
The research team is based at the Division of Ophthalmology and Orthoptics, University of Sheffield.

Details and contacts here

University of Cardiff

The Research Unit for Nystagmus at Cardiff University invites anyone who has infantile nystagmus and is interested in hearing about upcoming research participation opportunities to join their participant database by filling out this quick questionnaire.

Take part in research – Isle of Man residents only

We are happy to share an opportunity for residents of the Isle of Man living with congenital or acquired nystagmus to take part in a quality of life study. 

More details here

City University of New York and University of Wisconsin-Milwaukee

You are invited to participate in a research study titled “Understanding the Experiences of Individuals with Eye Movement Disorders.” This study aims to explore the lived experiences, challenges, and perspectives of individuals living with eye movement disorders. By sharing your experiences, you can contribute valuable insights that may help improve awareness, treatment options, and overall quality of life for individuals living with these conditions.

More details and consent to take part here

To help us continue to support research studies you can donate to our research fund here