Take part in nystagmus research


The Nystagmus Network works closely with the UK nystagmus research and clinical centres to bring you opportunities to take part in research.

How much do you know about nystagmus?

Everyone can take part in this 5 minute survey. Then share the link with your friends, family, colleagues, whoever you can think of, especially with people who may never have heard of nystagmus before.

The more people who take the survey, especially people who don’t know about nystagmus already, the better information we will gather.

The survey is about people’s perceptions of nystagmus. The results will help shape further nystagmus research and awareness raising strategies, contributing to better understanding of the condition and improved quality of life as a result.

Take part in the survey here

Cardiff

Professor Jon Erichsen and his team from the School of Optometry and Vision Sciences, Cardiff University, Nikita Thomas, Katherine Ward and Onyeka Amiebenomo invite you to take part in nystagmus research.

Following their demonstrations at virtual Open Day 2021 of various nystagmus and eye tracking studies currently being carried out, you are warmly invited to apply to take part.

If you’re interested, please apply below and we will pass your details on to the Cardiff University team, who will be in touch with you.

Apply to take part here

Southampton

Albinism researchers in Southampton (Jay Self and Helena Lee) would love to hear from anyone with any form of albinism who is over the age of 60. If you or anyone you know fits the bill, please complete the form.

Sheffield

Do you have recently diagnosed Acquired Nystagmus. Do you experience oscillopsia some or all of the time? Would you like to take part in a trial involving virtual reality glasses to see if they can alleviate the worst of your symptoms? If so, please contact us and we will put you in touch with the Sheffield team.

London

Division of Optometry and Visual Sciences, School of Health Sciences, City, University of London

People living with a visual impairment needed for research into the effect of the pandemic on people living with a visual impairment

As a study participant, you have the option to complete one or two online questionnaires about your experiences and views, one is about how the pandemic affected you and your wellbeing, the other asks about the effect on your Low Vision support services. There are options of an e-mailed Word document or paper version of the questionnaire if required.

More information and take part here

MEVU

Parents and carers of 0-6 year olds with nystagmus are invited to take part in an online questionnaire about their children’s vision use. The study is being carried out at the Australian Catholic University.

Find out more and take part here