A diagnosis of nystagmus does not automatically mean you are entitled to benefits. We can help you with information and support with applications.
The Nystagmus Network staff team will be supported by a new volunteer welfare rights and benefits adviser, Sabine Isaac early in 2026. Meanwhile, our retiring volunteer, Mike Hughes, who has tirelessly supported members of the nystagmus community for many years, is writing up a fully revised version of the Nystagmus Network guide to nystagmus, DLA and PIP. You can download the latest version here.
If you are a member of the Nystagmus Network and would like a referral to Sabine in 2026, please email us at info@nystagmusnet.org
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