Our volunteers
Meet the Nystagmus Network volunteers
Sara Riggs
Sara is a mum to four wonderful children of which her third child Charlie has idiopathic congenital nystagmus.
- Role: Volunteer
- Email: Email here
Elizabeth Jones
Elizabeth is a recently qualified Orthoptist who is keen to support the nystagmus community.
- Role: Volunteer
- Email: Email here
Rachel Thomas
Rachel is married and is a mum to two wonderful children. Whilst being a full time mum she is also working as a qualified Beauty and Holistic Therapist and Lecturer.
- Role: Volunteer
- Email: Email here
Leanne Leung
Leanne was born and raised in Toronto, Canada and is currently a second year Optometry student at MCPHS University in Worcester, Massachusetts.
- Role: Volunteer
- Email: Email here
Jamie Chapman
Jamie is 23 years old and was born 11 weeks early with congenital nystagmus.
- Role: Volunteer
- Email: Email here
Jen Martin
Jen is based in Canada and will help the charity signpost families from North America to the appropriate support services.
- Role: Volunteer
- Email: Email here
Jenny Rose
Jenny is one of our volunteers who has acquired nystagmus and wants to help support our community.
- Role: Volunteer
- Email: Email here
Penny Marsh
Penny is our volunteer who manages the Nystagmus Network Facebook group.
- Role: Volunteer
- Facebook: Click here